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ALPORT SYNDROME FOUNDATION INC

EIN: 20-8237159Scottsdale, AZZIP: 852614130
E86 - Health Care501(c)(3)

Mission

THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.

Financials

YearRevenueExpensesAssets
2024$1.2M$0$2.8M
2023$1M$0$2.7M

Compensation

2024

LISA BONEBRAKE
Executive Director
chief executive officer
$0
$0
$0
$105,000
PHILLIP KUMNICK
Director
board member
$0
$0
$0
$0
ANDREW KRONENBERG
Board Chair
board chair
$0
$0
$0
$0
AMY RHODES
Director
board member
$0
$0
$0
$0
DECEMBER WEST
Director
board member
$0
$0
$0
$0
RYAN LINDER
Secretary
officer (unspecified)
$0
$0
$0
$0
DANIEL KILPATRICK
Treasurer
officer (unspecified)
$0
$0
$0
$0
SHARON LAGAS
Co-founder, Director Past Chair
board chair
$0
$0
$0
$0
MARTY DUNLEAVY
Director
board member
$0
$0
$0
$0
STEPHEN MALACH
Director
board member
$0
$0
$0
$0

2023

RYAN LINDER
Secretary
officer (unspecified)
$0
$0
$0
$0
MARTIN DUNLEAVY
Treasurer
officer (unspecified)
$0
$0
$0
$0
SHARON LAGAS
Co-Founder, Director Past Chair
board chair
$0
$0
$0
$0
ANDRE WEINSTOCK
Director Research Chair
board chair
$0
$0
$0
$0
AMY RHODES
Director Fb Moderator
board member
$0
$0
$0
$0
DANIEL KILPATTRICK
Director Finance Committee
chief financial officer
$0
$0
$0
$0
PHILLIP KUMNICK
Director Dev. Chair
board chair
$0
$0
$0
$0
STEPHEN MALACH
Director Program Chair
board chair
$0
$0
$0
$0
LISA BONEBRAKE
Executive Director
chief executive officer
$0
$0
$0
$0
ANDREW KRONENBERG
Board Chair
board chair
$0
$0
$0
$0

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Data from IRS Form 990 filings (2023-2024).