THE FOUNDATION WAS CREATED TO EDUCATE AND SUPPORT PATIENTS AND FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL OF FUNDING RESEARCH, TO FIND MORE EFFECTIVE TREATMENT PROTOCOLS AND TO ULTIMATELY FIND A CURE.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Health Care organizations in Arizona.
| Position | Total |
|---|---|
Executive Director 25th percentile to median | $105k $112k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the West region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 9 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at ALPORT SYNDROME FOUNDATION INC equaled 10% of the organization's total expenses. The median for health care organizations is 4%.
Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about ALPORT SYNDROME FOUNDATION INC
What does the Chief Executive Officer of ALPORT SYNDROME FOUNDATION INC earn?
In 2024, the Chief Executive Officer of ALPORT SYNDROME FOUNDATION INC received $105,000 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Health Care organizations in Arizona, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at ALPORT SYNDROME FOUNDATION INC compare with similar nonprofits?
Compared with the same role at Health Care organizations in Arizona, the 2024 pay of the Chief Executive Officer at ALPORT SYNDROME FOUNDATION INC falls between the 25th percentile and the median. In 2024, the highest total compensation at ALPORT SYNDROME FOUNDATION INC equaled 10% of the organization's total expenses. The median for health care organizations is 4%.
What are ALPORT SYNDROME FOUNDATION INC's revenue and expenses?
In 2024, ALPORT SYNDROME FOUNDATION INC reported $1.2M in total revenue and $1M in total expenses on its IRS Form 990.
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