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Filing year 2024

Alstrom Syndrome International

Mount Desert, Maine·EIN 01-0515187·NTEE P820 · Human Services·501(c)(3)
Total revenue
$257k
Total assets
$181k
Total expenses
$174k
Reported officers
16
Mission

To provide support information and coordination world wide to families & professionals effectively treating Alstrom Syndrome as we work toward a cure

Executive compensation

Form 990 · Part VII & Schedule J · 4 reported individuals · Filing year 2024

Percentile bands compare each position's total pay with the same role at Human Services organizations in Maine.

CEO Start 11132024
Below 10th percentile
$20k
$21k
President
Below 10th percentile
$18k
$19k
Chair
Board Chair
25th percentile to medianvs Human Services peers nationwide
$18k
$19k
CEO End 10242024
Below 10th percentile
$15k
$16k

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 12 unpaid individuals.

Browse compensation in Human Services

Pay in context

Top pay as a share of expenses

In 2024, the highest total compensation at Alstrom Syndrome International equaled 11% of the organization's total expenses. The median for human services organizations is 8%.

This organization (2024)
11%
Sector median
8%
Middle half of sector
3% to 17%

Based on 26,698 human services organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Up 18%
from 2023

From $17k in 2023 to $20k in 2024.

$17k
2023
$20k
2024
In today's dollarsEst.
Up 15% in real terms$18k to $21k

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Pay for the position

Chief Executive Officer pay rose 18% from 2023 to 2024, while revenue rose 1%.

$17k in 2023 to $20k in 2024.
  • Board Chair pay rose 9% from 2023 to 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

FAQ

Common questions about Alstrom Syndrome International

What does the Chief Executive Officer of Alstrom Syndrome International earn?

In 2024, the Chief Executive Officer of Alstrom Syndrome International received $19,545 in total compensation. This pay is in the bottom 10% for Chief Executive Officer roles among Human Services organizations in Maine: at least 9 in 10 comparable filings report more. Based on IRS Form 990 data.

How does Chief Executive Officer pay at Alstrom Syndrome International compare with similar nonprofits?

Compared with the same role at Human Services organizations in Maine, the 2024 pay of the Chief Executive Officer at Alstrom Syndrome International falls in the bottom 10%. In 2024, the highest total compensation at Alstrom Syndrome International equaled 11% of the organization's total expenses. The median for human services organizations is 8%.

What are Alstrom Syndrome International's revenue and expenses?

In 2024, Alstrom Syndrome International reported $257k in total revenue and $174k in total expenses on its IRS Form 990.

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