To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
Executive compensation
Form 990 · Schedule J · 1 reported individual · Filing year 2023
| Position | Total |
|---|---|
Executive Director | $105k $116k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with San Diego-Carlsbad, CA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 6 unpaid individuals.
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What Diseases, Disorders & Medical Disciplines executives earn in California
Comparable diseases, disorders & medical disciplines organizations in California pay their highest-earning executive a median of $103,379.
These are diseases, disorders & medical disciplines sector-wide figures, not this organization's reported pay. Based on 68 organizations across 68 filings (2022 – 2023).
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