Mission
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
Executive compensation
Form 990 · Schedule J · 1 reported individual · Filing year 2023
| Base salary | Executive compensation | |
|---|---|---|
Plus 6 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
1
INTERNATIONAL HYPERBARICS ASSOCIATION INC2024
$160k
2
CARDIAC THERAPHY FOUNDATION OF THE MID PENINSULA2023
$117k
3
Bright Spot Network2023
$115k
4
Association for Creatine Deficiencies2023
$105k
5
PROJECT SLEEP2023
$99k
6
ADVANCED BIOSCIENCE RESOURCES2023
$91k
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