Mission
WE ARE A RARE DISEASE ADVOCACY ORGANIZATON THAT PROVIDES EDUCATION AND LITERATURE TO FAMILIES AND AGENCIES WHO ASSIST CHILDREN BORN WITH THE RARE CARDIO-FACIO-CUTANEOUS SYNDROME. WE HOST A WEBSITE, BIENNIAL INTERNATIONAL FAMILY CONFERENCES, AND A PRIVATE FAMILY COMPUTER LISTSERVE AND FACEBOOK PAGE. WE SUPPORT RESEARCHERS AND THEIR PROJECTS SO THE FAMILIES CAN CONTINUE TO LEARN MORE ABOUT THIS RARE CONDITION AND HOPEFULLY OBTAIN TREATMENTS FOR THEIR AFFECTED FAMILY MEMBER(S).
Executive compensation, broken down
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
Base salaryBonusOther compensationBenefits
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Plus 7 unpaid individuals.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Free, forever
Build lists. Save your benchmarks.
A free Lucido account lets you build lists of nonprofits and save your search filters. No credit card.
Create free account
Already a member? Sign in
Build a benchmark
Compare any role, sector, or revenue band
Build your own benchmark from millions of reported positions.