WE ARE A RARE DISEASE ADVOCACY ORGANIZATON THAT PROVIDES EDUCATION AND LITERATURE TO FAMILIES AND AGENCIES WHO ASSIST CHILDREN BORN WITH THE RARE CARDIO-FACIO-CUTANEOUS SYNDROME. WE HOST A WEBSITE, BIENNIAL INTERNATIONAL FAMILY CONFERENCES, AND A PRIVATE FAMILY COMPUTER LISTSERVE AND FACEBOOK PAGE. WE SUPPORT RESEARCHERS AND THEIR PROJECTS SO THE FAMILIES CAN CONTINUE TO LEARN MORE ABOUT THIS RARE CONDITION AND HOPEFULLY OBTAIN TREATMENTS FOR THEIR AFFECTED FAMILY MEMBER(S).
Executive compensation, broken down
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Education organizations in New York.
- Base
- $68k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Former Executive Director 25th percentile to median | $68k | — | — | — | $68k $76k |
CEO Below 10th percentile | — | — | — | — | $17k $19k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 7 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at CARDIO-FACIO-CUTANEOUS INTERNATIONAL equaled 34% of the organization's total expenses. The median for education organizations is 6%.
Based on 24,392 education organizations, each measured at its most recent filing year with reported expenses and compensation.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CARDIO-FACIO-CUTANEOUS INTERNATIONAL
What does the Chief Executive Officer of CARDIO-FACIO-CUTANEOUS INTERNATIONAL earn?
In 2023, the Chief Executive Officer of CARDIO-FACIO-CUTANEOUS INTERNATIONAL received $67,516 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Education organizations in New York, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CARDIO-FACIO-CUTANEOUS INTERNATIONAL compare with similar nonprofits?
Compared with the same role at Education organizations in New York, the 2023 pay of the Chief Executive Officer at CARDIO-FACIO-CUTANEOUS INTERNATIONAL falls between the 25th percentile and the median. In 2023, the highest total compensation at CARDIO-FACIO-CUTANEOUS INTERNATIONAL equaled 34% of the organization's total expenses. The median for education organizations is 6%.
What are CARDIO-FACIO-CUTANEOUS INTERNATIONAL's revenue and expenses?
In 2023, CARDIO-FACIO-CUTANEOUS INTERNATIONAL reported $185k in total revenue and $196k in total expenses on its IRS Form 990.
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