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CARDIO-FACIO-CUTANEOUS INTERNATIONAL

EIN: 16-1569293St James, NYZIP: 11780
B99 - Education501(c)(3)

Mission

WE ARE A RARE DISEASE ADVOCACY ORGANIZATON THAT PROVIDES EDUCATION AND LITERATURE TO FAMILIES AND AGENCIES WHO ASSIST CHILDREN BORN WITH THE RARE CARDIO-FACIO-CUTANEOUS SYNDROME. WE HOST A WEBSITE, BIENNIAL INTERNATIONAL FAMILY CONFERENCES, AND A PRIVATE FAMILY COMPUTER LISTSERVE AND FACEBOOK PAGE. WE SUPPORT RESEARCHERS AND THEIR PROJECTS SO THE FAMILIES CAN CONTINUE TO LEARN MORE ABOUT THIS RARE CONDITION AND HOPEFULLY OBTAIN TREATMENTS FOR THEIR AFFECTED FAMILY MEMBER(S).

Financials

YearRevenueExpensesAssets
2023$185k$0$535k

Compensation

Tuesdi Dyer
Former Executive Director
chief executive officer
$67,516
$0
$0
$67,516
Troy Greisen
CEO
chief executive officer
$0
$0
$0
$17,167
Jeff Kohler
Past President
chief executive officer
$0
$0
$0
$0
Richard Boyce
Board Member
board member
$0
$0
$0
$0
Darin Iacobelli
Treasurer
officer (unspecified)
$0
$0
$0
$0
Vidya Ramabadran
Board Member
board member
$0
$0
$0
$0
Glenda Hux
Board Member
board member
$0
$0
$0
$0
Pilar Magoulas
Board Member
board member
$0
$0
$0
$0
Alexis Nash
President
chief executive officer
$0
$0
$0
$0

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