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Filing year 2024

CORNELIA DE LANGE SYNDROME FOUNDATION

Avon, Connecticut·EIN 06-1057497·3
Total revenue
$1.1M
Total assets
$3.4M
Total expenses
$1.1M
Reported officers
12
Mission

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Executive compensation

Form 990 · Schedule J · 2 reported individuals · Filing year 2024

Executive Dir.
officer (unspecified)
$131k
$142k
MD Director
director (operational)
$15k
$16k

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 10 unpaid individuals.

Climbed 18%
over 2 years

From $111k in 2022 to $131k in 2024.

$111k
2022
$117k
2023
$131k
2024
In today's dollarsEst.
Up 10% in real terms$129k to $142k

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Financial trend

Revenue and expenses over time

CORNELIA DE LANGE SYNDROME FOUNDATION reported revenue and expenses across 3 filing years.

RevenueExpenses
$1.1M
$1.1M
2022
$946k
$993k
2023
$1.1M
$1.1M
2024
Total revenue and total expenses from IRS Form 990 filings.
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