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CORNELIA DE LANGE SYNDROME FOUNDATION

EIN: 06-1057497Avon, CTZIP: 06001
501(c)(3)

Mission

A family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Financials

YearRevenueExpensesAssets
2023$946k$0$3.3M
2022$1.1M$0$3.1M

Compensation

2023

Morrisette Royster
Executive Dir.
officer (unspecified)
$0
$0
$0
$116,737
Antonie Kline MD
MD Director
director (operational)
$0
$0
$0
$13,500
Arthur Lander
Director
board member
$0
$0
$0
$0
Eric Johnson
Treasurer
officer (unspecified)
$0
$0
$0
$0
Steve Snodsmith
Director
board member
$0
$0
$0
$0
Nicholas Jackson
Secretary
officer (unspecified)
$0
$0
$0
$0
Jennifer Gerton
Director
board member
$0
$0
$0
$0
Yvonne Alston
Director
board member
$0
$0
$0
$0
Paul Villani
Director
board member
$0
$0
$0
$0
Katherina Nikzah-Terhune
President
chief executive officer
$0
$0
$0
$0
Mary Ann Ehlert
Director
board member
$0
$0
$0
$0
Tricia Wise
Director
board member
$0
$0
$0
$0
Mike Feehan
Vice President
vice president
$0
$0
$0
$0
Mike Christie
Director
board member
$0
$0
$0
$0

2022

Morrisette Royster
Executive Dir.
officer (unspecified)
$0
$0
$0
$111,395
Antonie Kline MD
MD Director
director (operational)
$0
$0
$0
$0
Arthur Lander
Director
board member
$0
$0
$0
$0
Steve Snodsmith
Director
board member
$0
$0
$0
$0
Paul Villani
Director
board member
$0
$0
$0
$0
Mike Feehan
Vice President
vice president
$0
$0
$0
$0
Emily Turner
Director
board member
$0
$0
$0
$0
Nicholas Jackson
Secretary
officer (unspecified)
$0
$0
$0
$0
Eric Johnson
Treasurer
officer (unspecified)
$0
$0
$0
$0
Mary Ann Ehlert
Director
board member
$0
$0
$0
$0
Yvonne Alston
Director
board member
$0
$0
$0
$0
Angie Young
Director
board member
$0
$0
$0
$0
Katherina Nikzah-Terhune
President
chief executive officer
$0
$0
$0
$0
Tricia Wise
Director
board member
$0
$0
$0
$0
Mike Christie
Director
officer (unspecified)
$0
$0
$0
$0
Jennifer Gerton
Director
board member
$0
$0
$0
$0

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Learn more

Data from IRS Form 990 filings (2022-2023).