THE MISSION OF THE DIAMOND BLACKFAN ANEMIA FOUNDATION IS TO ADVANCE RESEARCH INITIATIVES THAT PROMOTE A BETTER UNDERSTANDING, THERAPEUTIC STRATEGIES AND A CURE FOR THIS RARE BONE MARROW FAILURE SYNDROME. WE ARE DEDICATED TO PROVIDING PATIENT ADVOCACY, SUPPORT AND EDUCATION SERVICES TO INDIVIDUALS, FAMILIES AND MEDICAL PROFESSIONALS RESULTING IN IMPROVEMENTS IN THE DIAGNOSIS, CLINICAL TREATMENT AND MANAGEMENT OF THE DISORDER, WHILE ENHANCING THE QUALITY OF LIFE OF AFFECTED FAMILIES WORLDWIDE.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in New York.
| Position | Total |
|---|---|
Executive Director 25th percentile to median | $66k $71k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 11 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at DIAMOND BLACKFAN ANEMIA FOUNDATION equaled 17% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 12%
from 2023
From $59k in 2023 to $66k in 2024.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 12% from 2023 to 2024, while revenue fell 25%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about DIAMOND BLACKFAN ANEMIA FOUNDATION
What does the Chief Executive Officer of DIAMOND BLACKFAN ANEMIA FOUNDATION earn?
In 2024, the Chief Executive Officer of DIAMOND BLACKFAN ANEMIA FOUNDATION received $65,704 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in New York, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at DIAMOND BLACKFAN ANEMIA FOUNDATION compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in New York, the 2024 pay of the Chief Executive Officer at DIAMOND BLACKFAN ANEMIA FOUNDATION falls between the 25th percentile and the median. In 2024, the highest total compensation at DIAMOND BLACKFAN ANEMIA FOUNDATION equaled 17% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are DIAMOND BLACKFAN ANEMIA FOUNDATION's revenue and expenses?
In 2024, DIAMOND BLACKFAN ANEMIA FOUNDATION reported $499k in total revenue and $397k in total expenses on its IRS Form 990.
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