DUP15Q ALLIANCE EMPOWERS INDIVIDUALS LIVING WITH DUP15Q SYNDROME AND OTHER RELATED RARE DISEASES TO REACH THEIR FULL POTENTIAL BY ADVANCING BREAKTHROUGH RESEARCH AND LIFE-CHANGING THERAPEUTIC TREATMENTS, SUPPORTING FAMILIES AFFECTED BY DUP15Q, AND PROMOTING ADVOCACY. WE ENVISION A WORLD WHERE FAMILIES, CLINICIANS, AND ADVOCATES ENABLE INDIVIDUALS WITH DUP15Q TO LIVE FULL AND PRODUCTIVE LIVES. WE SERVE AS THE LEADER IN RESEARCH, ADVOCACY, AND CLINICAL STANDARDS OF CARE FOR DUP15Q SYNDROME, AND ARE OFTEN THE FIRST POINT OF CONTACT FOR FAMILIES SEARCHING FOR INFORMATION AND RESOURCES REGARDING THEIR CHILD'S DIAGNOSIS.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2023
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
| Position | Total |
|---|---|
Executive Di Median to 75th percentile | $105k $115k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 9 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2023, the highest total compensation at DUP 15Q ALLIANCE equaled 12% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about DUP 15Q ALLIANCE
What does the Chief Executive Officer of DUP 15Q ALLIANCE earn?
In 2023, the Chief Executive Officer of DUP 15Q ALLIANCE received $105,000 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at DUP 15Q ALLIANCE compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2023 pay of the Chief Executive Officer at DUP 15Q ALLIANCE falls between the median and the 75th percentile. In 2023, the highest total compensation at DUP 15Q ALLIANCE equaled 12% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are DUP 15Q ALLIANCE's revenue and expenses?
In 2023, DUP 15Q ALLIANCE reported $923k in total revenue and $913k in total expenses on its IRS Form 990.
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