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Filing year 2024

DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION

New York, New York·EIN 13-6145280·NTEE G50Z · Diseases, Disorders & Medical Disciplines·501(c)(3)
Total revenue
$1.6M
Total assets
$1.1M
Total expenses
$2M
Reported officers
16
Mission

THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.

Executive compensation, broken down

Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024

Executive Dir.
Officer (Unspecified)
$302k
$327k
Base
$267k
Bonus
Other
Benefits
$36k

Teal figures restate each filed amount in 2026 dollars.

Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 15 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines

Pay in context

Top pay as a share of expenses

In 2024, the highest total compensation at DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION equaled 15% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

This organization (2024)
15%
Sector median
10%
Middle half of sector
4% to 22%

Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.

Up 19%
from 2023

From $253k in 2023 to $302k in 2024.

$253k
2023
$302k
2024
In today's dollarsEst.
Up 15% in real terms$284k to $327k

Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

FAQ

Common questions about DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION

What are DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION's revenue and expenses?

In 2024, DYSAUTONOMIA FOUNDATION INC DBA FAMILIAL DYSAUTONOMIA FOUNDATION reported $1.6M in total revenue and $2M in total expenses on its IRS Form 990.

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