HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGAIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 8 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at nonprofits nationwide, across all sectors.
- Base
- $286k
- Bonus
- —
- Other
- —
- Benefits
- $17k
- Base
- $282k
- Bonus
- —
- Other
- —
- Benefits
- $22k
- Base
- $218k
- Bonus
- —
- Other
- —
- Benefits
- $4k
- Base
- $191k
- Bonus
- —
- Other
- —
- Benefits
- $3k
- Base
- $120k
- Bonus
- —
- Other
- —
- Benefits
- $38k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Operations Officer Officer (Unspecified) | $286k | — | — | $17k | $318k $344k |
Chief Executive Off (thru 7/12/2024) Officer (Unspecified) | $282k | — | — | $22k | $316k $342k |
Chief Mission Officer Key Employee Median to 75th percentile | $218k | — | — | $4k | $233k $252k |
Director, National Development 75th to 90th percentile | $191k | — | — | $3k | $204k $221k |
Controller Median to 75th percentile | $120k | — | — | $38k | $165k $178k |
Regional Development Director Median to 75th percentile | — | — | — | — | $143k $154k |
Assistant Director, Mission Programs Highest Compensated Employee 25th percentile to median | — | — | — | — | $132k $142k |
Regional Development Officer Pacific West Highest Compensated Employee 10th to 25th percentile | — | — | — | — | $124k $134k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 18 unpaid individuals.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Fell 16%
over 3 years
From $380k in 2021 to $318k in 2024.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Key Employee pay rose 9% from 2023 to 2024, while revenue rose 3%.
- Chief Development Officer pay rose 19% from 2021 to 2024.
- Controller pay rose 6% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Revenue and expenses over time
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC reported revenue and expenses across 3 filing years.
Common questions about HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC
What does the Key Employee of HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC earn?
In 2024, the Key Employee of HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC received $232,842 in total compensation. This pay is above the median (the midpoint) for Key Employee roles among nonprofits nationwide, across all sectors, within the top half of comparable filings. Based on IRS Form 990 data.
How does Key Employee pay at HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC compare with similar nonprofits?
Compared with the same role at nonprofits nationwide, across all sectors, the 2024 pay of the Key Employee at HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC falls between the median and the 75th percentile.
What are HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC's revenue and expenses?
In 2024, HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC reported $10.2M in total revenue and $11.4M in total expenses on its IRS Form 990.
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