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HUNTINGTON'S DISEASE SOCIETY

EIN: 13-3349872New York, NYZIP: 10018
501(c)(3)

Mission

HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGAIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.

Financials

YearRevenueExpensesAssets
2023$9.8M$0$18.1M
2021$12.2M$0$15.8M

Compensation

2023

LOUISE VETTER
Chief Executive Officer
chief executive officer
$320,565
$49,737
$0
$423,374
ROSEMARY COLUCCIO
Chief Operations Officer
officer (unspecified)
$260,173
$0
$0
$289,923
DEBRA LOVECKY
Dir. of Education Prog Thru May 2023
highest compensated employee
$128,419
$0
$129,060
$275,177
ARIK JOHNSON
Chief Mission Officer
key employee
$203,067
$0
$0
$214,485
JAMISON SKALA
Director, National Development
chief development officer
$173,121
$0
$0
$185,469
REBECCA CHAN
Controller
highest compensated employee
$112,876
$0
$0
$155,440
DEBORAH BOYD
Regional Development Director
chief development officer
$0
$0
$0
$139,482
TERESA SRAJER
Chair
board chair
$0
$0
$0
$0
VICTOR SUNG MD
Past Chair
board chair
$0
$0
$0
$0
ANGELA ALLEN
Trustee
board member
$0
$0
$0
$0
ERIN FURR-STIMMING MD
Trustee
board member
$0
$0
$0
$0
BETH HOFFMAN
Trustee
board member
$0
$0
$0
$0
JEFF CARROLL
Trustee
board member
$0
$0
$0
$0
JAY HUGHES
Secretary
officer (unspecified)
$0
$0
$0
$0
KAMRAN ALAM
Treasurer
officer (unspecified)
$0
$0
$0
$0
LESLIE M THOMPSON PHD
Trustee
board member
$0
$0
$0
$0
MARK COE
Trustee
board member
$0
$0
$0
$0
VICKI WHEELOCK MD
Trustee
board member
$0
$0
$0
$0
JEFFREY BROWN
Trustee
board member
$0
$0
$0
$0
JONATHAN KLEIN ESQ
Trustee
board member
$0
$0
$0
$0
DOMINIQUE THOMAS
Trustee
board member
$0
$0
$0
$0
KELSEY PORTER
Trustee
board member
$0
$0
$0
$0
JENNE COLER-DARK
Chair Elect
board chair
$0
$0
$0
$0

2021

LOUISE VETTER
Chief Executive Officer
chief executive officer
$335,472
$0
$0
$379,914
ROSEMARY COLUCCIO
Chief Operations Officer
officer (unspecified)
$238,551
$0
$0
$265,538
DEBRA LOVECKY
Director of Education Programs
highest compensated employee
$156,953
$0
$0
$180,169
CHRISTOPHER COSENTINO
Director of Marketing & Comm.
director (operational)
$134,583
$0
$0
$174,799
JAMISON SKALA
Director, National Development
chief development officer
$160,058
$0
$0
$171,441
GEORGE YOHRLING
Chief Mission & Sci. Affairs
highest compensated employee
$158,686
$0
$0
$167,316
DEBORAH BOYD
Regional Development Director
chief development officer
$0
$0
$0
$127,202
DOMINIQUE THOMAS
Trustee
board member
$0
$0
$0
$0
LESLIE M THOMPSON PHD
Trustee
board member
$0
$0
$0
$0
VICKI WHEELOCK MD
Trustee
board member
$0
$0
$0
$0
VICTOR SUNG MD
Chair
board chair
$0
$0
$0
$0
TERESA SRAJER
Chair-Elect
officer (unspecified)
$0
$0
$0
$0
KAMRAN ALAM
Treasurer
officer (unspecified)
$0
$0
$0
$0
JENNE COLER-DARK
Secretary
officer (unspecified)
$0
$0
$0
$0
EJ GARNER
Past Chair
board chair
$0
$0
$0
$0
ANGELA ALLEN
Trustee
board member
$0
$0
$0
$0
DANIEL BRENNAN
Trustee
board member
$0
$0
$0
$0
MARK COE
Trustee
board member
$0
$0
$0
$0
STACY COEN
Trustee
board member
$0
$0
$0
$0
WENDY ERLER
Trustee
board member
$0
$0
$0
$0
ERIN FURR-STIMMING MD
Trustee
board member
$0
$0
$0
$0
JAY HUGHES
Trustee
board member
$0
$0
$0
$0
JONATHAN KLEIN ESQ
Trustee
board member
$0
$0
$0
$0
KELSEY PORTER
Trustee
board member
$0
$0
$0
$0

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Data from IRS Form 990 filings (2021-2023).