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Filing year 2024

KOOLEN-DE VRIES SYNDROME FOUNDATION

Wilmington, North Carolina·EIN 46-3208388·NTEE G80 · Diseases, Disorders & Medical Disciplines·501(c)(3)
Total revenue
$263k
Total assets
$574k
Total expenses
$270k
Reported officers
12
Mission

THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.

Reported officers (all unpaid)

No paid executives reported in 2024. KOOLEN-DE VRIES SYNDROME FOUNDATION reported 12 unpaid officers and board members on its 990.

Board Member
President
Board Member
Board Member
Treasurer
Board Member
Board Member
Board Member
Board Member
Board Member
Board Member
Board Member

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Financial trend

Revenue and expenses over time

KOOLEN-DE VRIES SYNDROME FOUNDATION reported revenue and expenses across 2 filing years.

RevenueExpenses
$306k
$325k
2023
$263k
$270k
2024
Total revenue and total expenses from IRS Form 990 filings.
Sector benchmark

What Diseases, Disorders & Medical Disciplines executives earn in North Carolina

KOOLEN-DE VRIES SYNDROME FOUNDATION reported no executive compensation in its latest filing. For context, the highest-paid executive at a comparable diseases, disorders & medical disciplines organization in North Carolina earns a median of $76,419.

25th percentile
$40k
Median
$76,419
75th percentile
$123k
90th percentile
$183k

These are diseases, disorders & medical disciplines sector-wide figures, not this organization's reported pay. Based on 73 organizations across 73 filings (2023 – 2024).

See full Diseases, Disorders & Medical Disciplines pay data for North Carolina
FAQ

Common questions about KOOLEN-DE VRIES SYNDROME FOUNDATION

What are KOOLEN-DE VRIES SYNDROME FOUNDATION's revenue and expenses?

In 2024, KOOLEN-DE VRIES SYNDROME FOUNDATION reported $263k in total revenue and $270k in total expenses on its IRS Form 990.

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