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KOOLEN-DE VRIES SYNDROME FOUNDATION

EIN: 46-3208388Wilmington, NCZIP: 28409
G80 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL (CONTINUED ON SCHEDULE O) GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.

Financials

YearRevenueExpensesAssets
2024$263k$0$574k
2023$306k$0$581k

Compensation

2024

ALAYNA HAYNAM
Board Member
board member
$0
$0
$0
$0
ASHLEY POINT
President
chief executive officer
$0
$0
$0
$0
CINDY ASBURY
Board Member
board member
$0
$0
$0
$0
EMILY LEMKE
Board Member
board member
$0
$0
$0
$0
GABRIEL STAGNER
Treasurer
officer (unspecified)
$0
$0
$0
$0
JESSICA COLLIER
Board Member
board member
$0
$0
$0
$0
KACI FISHER
Board Member
board member
$0
$0
$0
$0
NEAL DERMERER
Board Member
board member
$0
$0
$0
$0
MARIA LUISA VALENTIN DE SOLIS
Board Member
board member
$0
$0
$0
$0
KATIE MAHER
Board Member
board member
$0
$0
$0
$0
MATT HOLCOMBE
Board Member
board member
$0
$0
$0
$0
MEGAN HARTWELL
Board Member
board member
$0
$0
$0
$0

2023

ALAYNA HAYNAM
Vice-President
chief executive officer
$0
$0
$0
$0
NEAL DERMERER
Board Member
board member
$0
$0
$0
$0
GABRIEL STAGNER
Treasurer
officer (unspecified)
$0
$0
$0
$0
MATT HOLCOMBE
Board Member
board member
$0
$0
$0
$0
EMILY LEMKE
Board Member
board member
$0
$0
$0
$0
JESSICA COLLIER
Board Member
board member
$0
$0
$0
$0
KATIE MAHER
Board Member
board member
$0
$0
$0
$0
CINDY ASBURY
Board Member
board member
$0
$0
$0
$0
MARIA LUISA VALENTIN DE SOLIS
Board Member
board member
$0
$0
$0
$0
KACI FISHER
Board Member
board member
$0
$0
$0
$0
ASHLEY POINT
President
chief executive officer
$0
$0
$0
$0

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Data from IRS Form 990 filings (2023-2024).