Mission
TO PROVIDE EDUCATION, TREATMENT, RESEARCH, ADVOCACY AND SUPPORTIVE PROGRAMS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY BLEEDING DISORDERS AND IRON OVERLOAD.
Executive compensation, broken down
Form 990 · Schedule J · 5 reported individuals · Filing year 2023
President & CEO
$242k
$270k
- Base
- $188k
- Bonus
- $19k
- Other
- —
- Benefits
- $2k
$172k
$192k
- Base
- $143k
- Bonus
- $9k
- Other
- —
- Benefits
- $10k
VP of Clinical Services
vice president
$156k
$174k
- Base
- $127k
- Bonus
- $7k
- Other
- —
- Benefits
- —
Nurse Practitioner
highest compensated employee
$110k
$123k
Chairperson
board chair
$1k
$1k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President & CEO | $188k | $19k | — | $2k | $242k $270k |
CFO | $143k | $9k | — | $10k | $172k $192k |
VP of Clinical Services vice president | $127k | $7k | — | — | $156k $174k |
Nurse Practitioner highest compensated employee | — | — | — | — | $110k $123k |
Chairperson board chair | — | — | — | — | $1k $1k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 8 unpaid individuals.
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