To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 4 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in California.
- Base
- $241k
- Bonus
- —
- Other
- —
- Benefits
- $977
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
CEO 75th to 90th percentile | $241k | — | — | $977 | $264k $288k |
Comm/tech Manager Unclassified | — | — | — | — | $133k $145k |
Projects Manager Unclassified | — | — | — | — | $129k $141k |
Dir. of Programs Unclassified | — | — | — | — | $111k $121k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with San Francisco-Oakland-Hayward, CA metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2023, the highest total compensation at MYOTONIC DYSTROPHY FOUNDATION INC equaled 7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about MYOTONIC DYSTROPHY FOUNDATION INC
What does the Chief Executive Officer of MYOTONIC DYSTROPHY FOUNDATION INC earn?
In 2023, the Chief Executive Officer of MYOTONIC DYSTROPHY FOUNDATION INC received $264,348 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in California, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at MYOTONIC DYSTROPHY FOUNDATION INC compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in California, the 2023 pay of the Chief Executive Officer at MYOTONIC DYSTROPHY FOUNDATION INC falls between the 75th and 90th percentiles. In 2023, the highest total compensation at MYOTONIC DYSTROPHY FOUNDATION INC equaled 7% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are MYOTONIC DYSTROPHY FOUNDATION INC's revenue and expenses?
In 2023, MYOTONIC DYSTROPHY FOUNDATION INC reported $2.4M in total revenue and $3.8M in total expenses on its IRS Form 990.
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