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Filing year 2024

NATIONAL BLEEDING DISORDERS FOUNDATION

New York, New York·EIN 13-5641857·501(c)(3)
Total revenue
$16.6M
Total assets
$30.8M
Total expenses
$19.6M
Reported officers
23
Mission

THE NATIONAL BLEEDING DISORDERS FOUNDATION (FORMERLY THE NATIONAL HEMOPHILIA FOUNDATION) IS DEDICATED TO FINDING CURES FOR INHERITABLE BLOOD AND BLEEDING DISORDERS AND TO ADDRESSING AND PREVENTING THE COMPLICATIONS OF THESE DISORDERS THROUGH RESEARCH, EDUCATION, AND ADVOCACY ENABLING PEOPLE AND FAMILIES TO THRIVE.

Executive compensation, broken down

Form 990 · Part VII & Schedule J · 10 reported individuals · Filing year 2024

Percentile bands compare each position's total pay with the same role at nonprofits nationwide, across all sectors.

Chief Scientific Officer
Key Employee
Above 90th percentile
$415k
$449k
Base
$371k
Bonus
$25k
Other
$3k
Benefits
$360
President & CEO
Above 90th percentile
$350k
$379k
Base
$303k
Bonus
$28k
Other
$2k
Benefits
$17k
Managing Director
Highest Compensated Employee
75th to 90th percentile
$349k
$377k
Base
$303k
Bonus
Other
$3k
Benefits
$24k
Chief Business Officer
Officer (Unspecified)
$291k
$314k
Base
$212k
Bonus
Other
$3k
Benefits
$52k
Chief Operating Officer
75th to 90th percentile
$276k
$299k
Base
$217k
Bonus
Other
$3k
Benefits
$25k
Venture Principal
Highest Compensated Employee
75th to 90th percentile
$247k
$267k
Base
$175k
Bonus
Other
$1k
Benefits
$52k
S.v.p. of Public Policy
Highest Compensated Employee
75th to 90th percentile
$237k
$256k
Base
$175k
Bonus
Other
$420
Benefits
$36k
Access & Strategic Innovation
Highest Compensated Employee
Median to 75th percentile
$225k
$243k
Base
$178k
Bonus
Other
$630
Benefits
$29k
Senior Development Director
75th to 90th percentile
$210k
$227k
Base
$205k
Bonus
Other
$690
Benefits
$360
President & CEO - Thru 3/31/24
Median to 75th percentile
$151k
$163k
Base
$98k
Bonus
$37k
Other
$739
Benefits
$6k

Teal figures restate each filed amount in 2026 dollars.

Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 13 unpaid individuals.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Down 1%
from 2023

From $420k in 2023 to $415k in 2024.

$420k
2023
$415k
2024
In today's dollarsEst.
Down 5% in real terms$471k to $449k

Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Pay for the position

Key Employee pay rose 43% from 2023 to 2024, while revenue fell 13%.

$290k in 2023 to $415k in 2024.
  • Chief Executive Officer pay fell 16% from 2023 to 2024.
  • Highest Compensated Employee pay held roughly steady from 2023 to 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Financial trend

Revenue and expenses over time

NATIONAL BLEEDING DISORDERS FOUNDATION reported revenue and expenses across 2 filing years.

RevenueExpenses
$19M
$23.1M
2023
$16.6M
$19.6M
2024
Total revenue and total expenses from IRS Form 990 filings.
FAQ

Common questions about NATIONAL BLEEDING DISORDERS FOUNDATION

What does the Key Employee of NATIONAL BLEEDING DISORDERS FOUNDATION earn?

In 2024, the Key Employee of NATIONAL BLEEDING DISORDERS FOUNDATION received $415,294 in total compensation. This pay is in the top 10% for Key Employee roles among nonprofits nationwide, across all sectors: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.

How does Key Employee pay at NATIONAL BLEEDING DISORDERS FOUNDATION compare with similar nonprofits?

Compared with the same role at nonprofits nationwide, across all sectors, the 2024 pay of the Key Employee at NATIONAL BLEEDING DISORDERS FOUNDATION falls in the top 10%.

What are NATIONAL BLEEDING DISORDERS FOUNDATION's revenue and expenses?

In 2024, NATIONAL BLEEDING DISORDERS FOUNDATION reported $16.6M in total revenue and $19.6M in total expenses on its IRS Form 990.

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