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NATIONAL FABRY DISEASE FOUNDATION

EIN: 20-2944028Hillsborough, NCZIP: 27278
G198 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

TO ENSURE THAT ALL INDIVIDUALS WITH FABRY DISEASE ARE IDENTIFIED, DIAGNOSED AND PROVIDED AN OPPORTUNITY FOR TREATMENT IN TIME TO AVOID A DIMINISHED QUALITY-OF-LIFE AND LIFE-THREATENING CONSEQUENCES; TO PROVIDE EDUCATION AND AWARENESS TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES, TO PHYSICIANS, AND TO THE PUBLIC; TO PROVIDE SUPPORT AND ASSISTANCE TO PEOPLE WITH FABRY DISEASE AND THEIR FAMILIES; AND TO CONDUCT AND PROMOTE RESEARCH TO IMPROVE MANAGEMENT AND TREATMENT FOR FABRY DISEASE.

Financials

YearRevenueExpensesAssets
2023$575k$0$414k

Compensation

GERALD WALTER
Chair
board chair
$0
$0
$0
$118,335
DEREK HALBERG
Vice Chair
board vice chair
$0
$0
$0
$0
TRACY MYATT
Secretary
officer (unspecified)
$0
$0
$0
$0
MELANIE WILSON
Treasurer
officer (unspecified)
$0
$0
$0
$0
ELIZABETH GAFFIN
Director
board member
$0
$0
$0
$0
STEVEN ROTHMAN
Director
board member
$0
$0
$0
$0

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Data from IRS Form 990 filings (2023).