NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Executive compensation, broken down
Form 990 · Schedule J · 9 reported individuals · Filing year 2024
- Base
- $417k
- Bonus
- $25k
- Other
- —
- Benefits
- $16k
- Base
- $349k
- Bonus
- $25k
- Other
- —
- Benefits
- $7k
- Base
- $271k
- Bonus
- —
- Other
- —
- Benefits
- $47k
- Base
- $283k
- Bonus
- —
- Other
- —
- Benefits
- $417
- Base
- $207k
- Bonus
- —
- Other
- —
- Benefits
- $47k
- Base
- $226k
- Bonus
- $20k
- Other
- —
- Benefits
- —
- Base
- $180k
- Bonus
- —
- Other
- —
- Benefits
- $33k
- Base
- $182k
- Bonus
- —
- Other
- —
- Benefits
- $16k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
EVP (until 5/24)/ceo (as of 5/24) executive vice president | $417k | $25k | — | $16k | $475k $508k |
CEO (until 5/24)/ceo Emeritus (as of 5/24) | $349k | $25k | — | $7k | $399k $426k |
Chief Medical & Scientific Officer highest compensated employee | $271k | — | — | $47k | $332k $355k |
VP Information Technology vice president | $283k | — | — | $417 | $298k $318k |
VP Community & Corporate Affairs vice president | $207k | — | — | $47k | $266k $283k |
VP of Development vice president | $226k | $20k | — | — | $258k $275k |
VP & CFO | $180k | — | — | $33k | $222k $237k |
VP Patient Services vice president | $182k | — | — | $16k | $208k $222k |
Chief Strategy & Operations Officer officer (unspecified) | — | — | — | — | $77k $83k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Down 9%
from 2023
From $523k in 2023 to $475k in 2024.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Revenue and expenses over time
NATIONAL ORGANIZATION FOR RARE DISORDERS INC reported revenue and expenses across 2 filing years.
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