NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 9 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at nonprofits nationwide, across all sectors.
- Base
- $417k
- Bonus
- $25k
- Other
- —
- Benefits
- $16k
- Base
- $349k
- Bonus
- $25k
- Other
- —
- Benefits
- $7k
- Base
- $271k
- Bonus
- —
- Other
- —
- Benefits
- $47k
- Base
- $283k
- Bonus
- —
- Other
- —
- Benefits
- $417
- Base
- $207k
- Bonus
- —
- Other
- —
- Benefits
- $47k
- Base
- $226k
- Bonus
- $20k
- Other
- —
- Benefits
- —
- Base
- $180k
- Bonus
- —
- Other
- —
- Benefits
- $33k
- Base
- $182k
- Bonus
- —
- Other
- —
- Benefits
- $16k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
EVP (until 5/24)/ceo (as of 5/24) Executive Vice President 75th to 90th percentile | $417k | $25k | — | $16k | $475k $508k |
CEO (until 5/24)/ceo Emeritus (as of 5/24) Above 90th percentile | $349k | $25k | — | $7k | $399k $426k |
Chief Medical & Scientific Officer Highest Compensated Employee 75th to 90th percentile | $271k | — | — | $47k | $332k $355k |
VP Information Technology Board Vice President 75th to 90th percentile | $283k | — | — | $417 | $298k $318k |
VP Community & Corporate Affairs Board Vice President 75th to 90th percentile | $207k | — | — | $47k | $266k $283k |
VP of Development Board Vice President 75th to 90th percentile | $226k | $20k | — | — | $258k $275k |
VP & CFO 75th to 90th percentile | $180k | — | — | $33k | $222k $237k |
VP Patient Services Board Vice President Median to 75th percentile | $182k | — | — | $16k | $208k $222k |
Chief Strategy & Operations Officer Officer (Unspecified) | — | — | — | — | $77k $83k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 9%
from 2023
From $523k in 2023 to $475k in 2024.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Executive Vice President pay rose 12% from 2023 to 2024, while revenue fell 24%.
- Chief Executive Officer pay fell 24% from 2023 to 2024.
- Highest Compensated Employee pay rose 1% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Revenue and expenses over time
NATIONAL ORGANIZATION FOR RARE DISORDERS INC reported revenue and expenses across 2 filing years.
Common questions about NATIONAL ORGANIZATION FOR RARE DISORDERS INC
What does the Executive Vice President of NATIONAL ORGANIZATION FOR RARE DISORDERS INC earn?
In 2024, the Executive Vice President of NATIONAL ORGANIZATION FOR RARE DISORDERS INC received $475,492 in total compensation. This pay is in the top quarter for Executive Vice President roles among nonprofits nationwide, across all sectors, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Executive Vice President pay at NATIONAL ORGANIZATION FOR RARE DISORDERS INC compare with similar nonprofits?
Compared with the same role at nonprofits nationwide, across all sectors, the 2024 pay of the Executive Vice President at NATIONAL ORGANIZATION FOR RARE DISORDERS INC falls between the 75th and 90th percentiles.
What are NATIONAL ORGANIZATION FOR RARE DISORDERS INC's revenue and expenses?
In 2024, NATIONAL ORGANIZATION FOR RARE DISORDERS INC reported $50.7M in total revenue and $43M in total expenses on its IRS Form 990.
Compare any role, sector, or revenue band
Build your own benchmark from millions of reported positions.
Learn More About Nonprofit Compensation
Guides to help you understand and use this data
Nonprofit CFO Salary
What nonprofit CFOs earn, what drives the number, and how to use public compensation data in a job search or negotiation.
Read moreNonprofit Executive Director Salary
What nonprofit executive directors earn, what drives the number, and how to use public compensation data whether you are a candidate, a current ED, or a board member.
Read moreHow to Look Up Nonprofit Salaries
Two approaches to finding executive compensation at any tax-exempt organization, from raw IRS filings to searchable databases.
Read more