OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in Ohio.
| Position | Total |
|---|---|
President & Median to 75th percentile | $100k $108k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 13 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION equaled 10% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 2%
from 2023
From $99k in 2023 to $100k in 2024.
Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 2% from 2023 to 2024, while revenue fell 19%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION
What does the Chief Executive Officer of BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION earn?
In 2024, the Chief Executive Officer of BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received $100,000 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Ohio, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Ohio, the 2024 pay of the Chief Executive Officer at BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION falls between the median and the 75th percentile. In 2024, the highest total compensation at BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION equaled 10% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION's revenue and expenses?
In 2024, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION reported $602k in total revenue and $967k in total expenses on its IRS Form 990.
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