To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals and families with Usher syndrome.
Executive compensation
Form 990 · Schedule J · 1 reported individual · Filing year 2024
| Position | Total |
|---|---|
Executive Director | $79k $84k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Up 8%
from 2023
From $72k in 2023 to $79k in 2024.
Estimated with Boston-Cambridge-Newton, MA-NH metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Revenue and expenses over time
Coalition For Usher Syndrome Research reported revenue and expenses across 2 filing years.
What Health Care executives earn in Massachusetts
Comparable health care organizations in Massachusetts pay their highest-earning executive a median of $169,601.
These are health care sector-wide figures, not this organization's reported pay. Based on 82 organizations across 82 filings (2022 – 2023).
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