Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the beta cells of the pancreas secrete too much insulin in an unregulated manner. Excess insulin causes hypoglycemia. Prolonged or severe hypoglycemia can cause seizures, permanent brain damage, or even death if left untreated. A good prognosis is far more likely with a timely diagnosis and proper management.
Executive compensation
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in New Jersey.
| Position | Total |
|---|---|
CEO 25th percentile to median | $114k $123k |
Cro Officer (Unspecified) | $95k $103k |
COO 10th to 25th percentilevs Diseases, Disorders & Medical Disciplines peers nationwide | $90k $97k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 7 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at CONGENITAL HYPERINSULINISM INTERNATIONAL equaled 10% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 10%
from 2023
From $104k in 2023 to $114k in 2024.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 10% from 2023 to 2024, while revenue rose 11%.
- Chief Operating Officer pay rose 13% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CONGENITAL HYPERINSULINISM INTERNATIONAL
What does the Chief Executive Officer of CONGENITAL HYPERINSULINISM INTERNATIONAL earn?
In 2024, the Chief Executive Officer of CONGENITAL HYPERINSULINISM INTERNATIONAL received $114,071 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in New Jersey, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CONGENITAL HYPERINSULINISM INTERNATIONAL compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in New Jersey, the 2024 pay of the Chief Executive Officer at CONGENITAL HYPERINSULINISM INTERNATIONAL falls between the 25th percentile and the median. In 2024, the highest total compensation at CONGENITAL HYPERINSULINISM INTERNATIONAL equaled 10% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are CONGENITAL HYPERINSULINISM INTERNATIONAL's revenue and expenses?
In 2024, CONGENITAL HYPERINSULINISM INTERNATIONAL reported $1.3M in total revenue and $1.1M in total expenses on its IRS Form 990.
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