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Filing year 2024

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC

Akron, Ohio·EIN 65-0404623·3
Total revenue
$2.9M
Total assets
$9.2M
Total expenses
$1.9M
Reported officers
23
Mission

CREUTZFELDT-JAKOB DISEASE (CJD) IS A RARE, RAPIDLY PROGRESSIVE NEURODEGENERATIVE DISEASE, ONE OF SEVERAL PRION DISEASES CAUSED BY PRION PROTEINS THAT MISFOLD IN THE BRAIN. THERE IS NO TREATMENT OR CURE AND THE DISEASE IS INVARIABLY FATAL. (CONTINUED ON SCHEDULE O)

Executive compensation

Form 990 · Schedule J · 1 reported individual · Filing year 2024

President/executive Director
$111k
$120k

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 22 unpaid individuals.

Held steady
from 2023

From $111k in 2023 to $111k in 2024.

$111k
2023
$111k
2024
In today's dollarsEst.
Down 3% in real terms$123k to $120k

Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Financial trend

Revenue and expenses over time

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC reported revenue and expenses across 2 filing years.

RevenueExpenses
$2.9M
$1.5M
2023
$2.9M
$1.9M
2024
Total revenue and total expenses from IRS Form 990 filings.
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