CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 9 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $243k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $235k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $214k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $199k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $190k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $174k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $170k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $169k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $151k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Executive Director Median to 75th percentilevs Medical Research peers in California | $243k | — | — | — | $243k $260k |
Chief Scientific Officer Key Employee 25th percentile to median | $235k | — | — | — | $235k $251k |
Vice President of Research Board Vice President Median to 75th percentile | $214k | — | — | — | $214k $229k |
Director of Clinical Devel Key Employee 25th percentile to median | $199k | — | — | — | $199k $213k |
Finance Director Median to 75th percentile | $190k | — | — | — | $190k $203k |
Director of Marketing Director (Operational) Median to 75th percentile | $174k | — | — | — | $174k $186k |
Director of Communications Director (Operational) Median to 75th percentile | $170k | — | — | — | $170k $182k |
Director of Programs Key Employee 10th to 25th percentile | $169k | — | — | — | $169k $180k |
CEO 25th percentile to medianvs Medical Research peers in California | $151k | — | — | — | $151k $162k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Los Angeles-Long Beach-Anaheim, CA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 14 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at CURE DUCHENNE equaled 3% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 8%
from 2023
From $225k in 2023 to $243k in 2024.
Estimated with Los Angeles-Long Beach-Anaheim, CA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 61% from 2023 to 2024, while revenue fell 46%.
- Key Employee pay rose 4% from 2023 to 2024.
- Board Vice President pay fell 5% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CURE DUCHENNE
What does the Chief Executive Officer of CURE DUCHENNE earn?
In 2024, the Chief Executive Officer of CURE DUCHENNE received $243,077 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations in California, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CURE DUCHENNE compare with similar nonprofits?
Compared with the same role at Medical Research organizations in California, the 2024 pay of the Chief Executive Officer at CURE DUCHENNE falls between the median and the 75th percentile. In 2024, the highest total compensation at CURE DUCHENNE equaled 3% of the organization's total expenses. The median for medical research organizations is 10%.
What are CURE DUCHENNE's revenue and expenses?
In 2024, CURE DUCHENNE reported $3.9M in total revenue and $9.2M in total expenses on its IRS Form 990.
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