OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2023
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $164k
- Bonus
- —
- Other
- —
- Benefits
- $10k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Founder & CEO Median to 75th percentile | $164k | — | — | $10k | $174k $195k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 11 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2023, the highest total compensation at CURE RARE DISEASE INC equaled 9% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 96%
from 2022
From $89k in 2022 to $174k in 2023.
Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 96% from 2022 to 2023, while revenue rose 93%.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2023.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CURE RARE DISEASE INC
What does the Chief Executive Officer of CURE RARE DISEASE INC earn?
In 2023, the Chief Executive Officer of CURE RARE DISEASE INC received $174,441 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CURE RARE DISEASE INC compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2023 pay of the Chief Executive Officer at CURE RARE DISEASE INC falls between the median and the 75th percentile. In 2023, the highest total compensation at CURE RARE DISEASE INC equaled 9% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are CURE RARE DISEASE INC's revenue and expenses?
In 2023, CURE RARE DISEASE INC reported $4.4M in total revenue and $2M in total expenses on its IRS Form 990.
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