OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
Executive compensation, broken down
Form 990 · Schedule J · 1 reported individual · Filing year 2023
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Plus 11 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Up 96%
from 2022
From $89k in 2022 to $174k in 2023.
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