THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
President 10th to 25th percentile | $48k $50k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Phoenix-Mesa-Scottsdale, AZ metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at CURE TAY-SACHS FOUNDATION equaled 19% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CURE TAY-SACHS FOUNDATION
What does the Chief Executive Officer of CURE TAY-SACHS FOUNDATION earn?
In 2024, the Chief Executive Officer of CURE TAY-SACHS FOUNDATION received $48,000 in total compensation. This pay is in the bottom quarter for Chief Executive Officer roles among Medical Research organizations nationwide, above the lowest 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CURE TAY-SACHS FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at CURE TAY-SACHS FOUNDATION falls between the 10th and 25th percentiles. In 2024, the highest total compensation at CURE TAY-SACHS FOUNDATION equaled 19% of the organization's total expenses. The median for medical research organizations is 10%.
What are CURE TAY-SACHS FOUNDATION's revenue and expenses?
In 2024, CURE TAY-SACHS FOUNDATION reported $141k in total revenue and $251k in total expenses on its IRS Form 990.
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