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CURE TAY-SACHS FOUNDATION

EIN: 26-0256621Phoenix, AZZIP: 85016
H128 - Medical Research501(c)(3)

Mission

THE CURE TAY-SACHS FOUNDATION HAS BEEN CREATED TO FUND THE RESEARCH INITIATIVES THAT SHOW PROMISE TO TREAT AND ULTIMATELY CURE TAY-SACHS DISEASE (TSD). TSD IS HEREDITARY DISEASE PASSED ON WHEN TWO CARRIER PARENTS BOTH PASS THE TAY-SACHS GENE TO THEIR CHILD. TAY-SACHS HAS THREE FORMS - THE CLASSIC OR INFANTILE FORM, THE JUVENILE ONSET FORM AND THE LATE ON-SET FORM KNOWN AS LOTS. CHILDREN INFECTED WITH THE INFANTILE OR JUVENILE FORM CURRENTLY HAVE A 100% MORTAILITY RATE - NO CHILD HAS EVER SURVIVED THIS DISEASE. WE AIM TO CHANGE THAT.

Financials

YearRevenueExpensesAssets
2024$141k$0$1.9M
2023$108k$0$2.1M

Compensation

2024

RICK KARL
President
chief executive officer
$0
$0
$0
$48,000
CHERYL BABO
Director
board member
$0
$0
$0
$0
NICKI LUCE
Director
board member
$0
$0
$0
$0
LAURIE TEN BERG
Director
board member
$0
$0
$0
$0
TERRY KARL ESQ
Director
board member
$0
$0
$0
$0
ROBBIE SANDOVAL
Director
board member
$0
$0
$0
$0
BRIAN PLICK
Director
board member
$0
$0
$0
$0
HOLLY MCDONALD
Director
board member
$0
$0
$0
$0
ROYCE STINGER
Director
board member
$0
$0
$0
$0
DEEPA KODALI
Director
board member
$0
$0
$0
$0
BRIANNE ANDERSON
Director
board member
$0
$0
$0
$0
MATT LUNCHICK
Director
board member
$0
$0
$0
$0
BRUCE STEIGER
Treasurer
chief financial officer
$0
$0
$0
$0

2023

RICK KARL
President
chief executive officer
$0
$0
$0
$0
ROBBIE SANDOVAL
Director
board member
$0
$0
$0
$0
TERRY KARL ESQ
Director
board member
$0
$0
$0
$0
DEEPA KODALI
Director
board member
$0
$0
$0
$0
BRUCE STEIGER
Treasurer
chief financial officer
$0
$0
$0
$0
CHERYL BABO
Director
board member
$0
$0
$0
$0
BRIAN PLICK
Director
board member
$0
$0
$0
$0
BRIANNE ANDERSON
Director
board member
$0
$0
$0
$0
LAURIE TEN BERG
Director
board member
$0
$0
$0
$0
MATT LUNCHICK
Director
board member
$0
$0
$0
$0
NICKI LUCE
Director
board member
$0
$0
$0
$0
ROYCE STINGER
Director
board member
$0
$0
$0
$0
HOLLY MCDONALD
Director
board member
$0
$0
$0
$0

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