THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGANIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITY SPECTRUM DISORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLABORATIVELY TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Health Care organizations in New York.
| Position | Total |
|---|---|
CFO 25th percentile to median | $86k $93k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 15 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at EHLERS-DANLOS SOCIETY equaled 2% of the organization's total expenses. The median for health care organizations is 4%.
Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 11%
from 2023
From $78k in 2023 to $86k in 2024.
Estimated with New York-Newark-Jersey City, NY-NJ-PA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Financial Officer pay rose 11% from 2023 to 2024, while revenue fell 49%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about EHLERS-DANLOS SOCIETY
What does the Chief Financial Officer of EHLERS-DANLOS SOCIETY earn?
In 2024, the Chief Financial Officer of EHLERS-DANLOS SOCIETY received $86,347 in total compensation. This pay is below the median (the midpoint) for Chief Financial Officer roles among Health Care organizations in New York, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Financial Officer pay at EHLERS-DANLOS SOCIETY compare with similar nonprofits?
Compared with the same role at Health Care organizations in New York, the 2024 pay of the Chief Financial Officer at EHLERS-DANLOS SOCIETY falls between the 25th percentile and the median. In 2024, the highest total compensation at EHLERS-DANLOS SOCIETY equaled 2% of the organization's total expenses. The median for health care organizations is 4%.
What are EHLERS-DANLOS SOCIETY's revenue and expenses?
In 2024, EHLERS-DANLOS SOCIETY reported $5M in total revenue and $4.5M in total expenses on its IRS Form 990.
Compare any role, sector, or revenue band
Build your own benchmark from millions of reported positions.
Learn More About Nonprofit Compensation
Guides to help you understand and use this data
Nonprofit CFO Salary
What nonprofit CFOs earn, what drives the number, and how to use public compensation data in a job search or negotiation.
Read moreNonprofit Executive Director Salary
What nonprofit executive directors earn, what drives the number, and how to use public compensation data whether you are a candidate, a current ED, or a board member.
Read moreHow to Look Up Nonprofit Salaries
Two approaches to finding executive compensation at any tax-exempt organization, from raw IRS filings to searchable databases.
Read more