OUR MISSION IS TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Executive compensation, broken down
Form 990 · Schedule J · 9 reported individuals · Filing year 2024
- Base
- $329k
- Bonus
- —
- Other
- —
- Benefits
- $7k
- Base
- $266k
- Bonus
- —
- Other
- —
- Benefits
- $19k
- Base
- $209k
- Bonus
- —
- Other
- —
- Benefits
- $21k
- Base
- $218k
- Bonus
- —
- Other
- —
- Benefits
- $1k
- Base
- $175k
- Bonus
- —
- Other
- —
- Benefits
- $21k
- Base
- $150k
- Bonus
- —
- Other
- —
- Benefits
- $8k
- Base
- $138k
- Bonus
- —
- Other
- —
- Benefits
- $14k
- Base
- $146k
- Bonus
- —
- Other
- —
- Benefits
- $1k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President | $329k | — | — | $7k | $349k $373k |
Chief Development Officer | $266k | — | — | $19k | $295k $315k |
Chief Operating Officer | $209k | — | — | $21k | $239k $256k |
Chief Medical Officer (through 3/31/25) key employee | $218k | — | — | $1k | $229k $245k |
Sr Vice President, Communi vice president | $175k | — | — | $21k | $202k $217k |
Vice President, Policy vice president | $150k | — | — | $8k | $163k $175k |
Vice President, Clinical Research & Care vice president | $138k | — | — | $14k | $159k $170k |
Vice President of Research vice president | $146k | — | — | $1k | $154k $165k |
Vice President of Development vice president | — | — | — | — | $145k $155k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 27 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Down 3%
from 2023
From $358k in 2023 to $349k in 2024.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Revenue and expenses over time
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA reported revenue and expenses across 2 filing years.
What Diseases, Disorders & Medical Disciplines executives earn
Comparable diseases, disorders & medical disciplines organizations nationwide pay their highest-earning executive a median of $89,225.
These are diseases, disorders & medical disciplines sector-wide figures, not this organization's reported pay. Based on 619 organizations across 619 filings (2021 – 2023).
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