OUR MISSION IS TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 9 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $329k
- Bonus
- —
- Other
- —
- Benefits
- $7k
- Base
- $266k
- Bonus
- —
- Other
- —
- Benefits
- $19k
- Base
- $209k
- Bonus
- —
- Other
- —
- Benefits
- $21k
- Base
- $218k
- Bonus
- —
- Other
- —
- Benefits
- $1k
- Base
- $175k
- Bonus
- —
- Other
- —
- Benefits
- $21k
- Base
- $150k
- Bonus
- —
- Other
- —
- Benefits
- $8k
- Base
- $138k
- Bonus
- —
- Other
- —
- Benefits
- $14k
- Base
- $146k
- Bonus
- —
- Other
- —
- Benefits
- $1k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President 75th to 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Illinois | $329k | — | — | $7k | $349k $373k |
Chief Development Officer 75th to 90th percentile | $266k | — | — | $19k | $295k $315k |
Chief Operating Officer 75th to 90th percentile | $209k | — | — | $21k | $239k $256k |
Chief Medical Officer (through 3/31/25) Key Employee Median to 75th percentile | $218k | — | — | $1k | $229k $245k |
Sr Vice President, Communi Board Vice President Median to 75th percentile | $175k | — | — | $21k | $202k $217k |
Vice President, Policy Board Vice President 25th percentile to median | $150k | — | — | $8k | $163k $175k |
Vice President, Clinical Research & Care Board Vice President 25th percentile to median | $138k | — | — | $14k | $159k $170k |
Vice President of Research Board Vice President 25th percentile to median | $146k | — | — | $1k | $154k $165k |
Vice President of Development Board Vice President 25th percentile to median | — | — | — | — | $145k $155k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 27 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA equaled 2% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 3%
from 2023
From $358k in 2023 to $349k in 2024.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay fell 3% from 2023 to 2024, while revenue rose 3%.
- Chief Development Officer pay rose 97% from 2023 to 2024.
- Chief Operating Officer pay fell 5% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA
What does the Chief Executive Officer of FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA earn?
In 2024, the Chief Executive Officer of FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received $348,806 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Illinois, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Illinois, the 2024 pay of the Chief Executive Officer at FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA falls between the 75th and 90th percentiles. In 2024, the highest total compensation at FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA equaled 2% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA's revenue and expenses?
In 2024, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA reported $15.2M in total revenue and $14M in total expenses on its IRS Form 990.
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