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Filing year 2023

FAMILIES OF SPINAL MUSCULAR ATROPHY

Elk Grove Village, Illinois·EIN 36-3320440·NTEE G110 · Diseases, Disorders & Medical Disciplines·3
Total revenue
$14.8M
Total assets
$10.7M
Total expenses
$0
Reported officers
32
Mission

CURE SMA LEADS THE WAY TO A WORLD WHERE EVERYONE IMPACTED BY SPINAL MUSCULAR ATROPHY (SMA) IS EMPOWERED TO LEAD INDEPENDENT, SUCCESSFUL, AND FULFILLING LIVES. WE STRIVE TO CREATE A COMMUNITY WHERE EVERY INDIVIDUAL IS HEARD AND FEELS WELCOMED. CURE SMA PROVIDES PRACTICAL SUPPORT PROGRAMS FOR OUR COMMUNITY AND ADVOCATES FOR THEIR NEEDS. WE FUND AND DIRECT COMPREHENSIVE RESEARCH THAT DRIVES BREAKTHROUGHS IN TREATMENT, AND WE ADVANCE ACCESS TO HIGH QUALITY CARE. WE WILL NOT STOP UNTIL WE HAVE A CURE.

Executive compensation, broken down

Form 990 · Schedule J · 8 reported individuals · Filing year 2023

Base salaryBonusOther compensationBenefits
Base salaryBonusOther compensationBenefitsExecutive compensation
Chief Medical Officer
key employee
$300k
Chief Operating Officer
$252k
Sr Vice President, Communi
vice president
$203k
Vice President, Policy
vice president
$163k
Vice President, Marketing & Communication (Through
vice president
$152k
Vice President of Research
vice president
$151k
Chief Development Officer
$150k

Plus 24 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines

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