The Glut1 Deficiency Foundation is a parent-led patient advocacy organization dedicated to bringing help and hope to the Glut1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
| Position | Total |
|---|---|
Executive Director 10th to 25th percentile | $50k $53k |
Science Director Key Employee 10th to 25th percentile | $49k $52k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 7 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at Glut1 Deficiency Foundation Inc equaled 8% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 6%
from 2023
From $48k in 2023 to $50k in 2024.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 11% from 2023 to 2024, while revenue rose 51%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about Glut1 Deficiency Foundation Inc
What does the Chief Executive Officer of Glut1 Deficiency Foundation Inc earn?
In 2024, the Chief Executive Officer of Glut1 Deficiency Foundation Inc received $50,192 in total compensation. This pay is in the bottom quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations nationwide, above the lowest 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at Glut1 Deficiency Foundation Inc compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Chief Executive Officer at Glut1 Deficiency Foundation Inc falls between the 10th and 25th percentiles. In 2024, the highest total compensation at Glut1 Deficiency Foundation Inc equaled 8% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are Glut1 Deficiency Foundation Inc's revenue and expenses?
In 2024, Glut1 Deficiency Foundation Inc reported $515k in total revenue and $609k in total expenses on its IRS Form 990.
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