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INTERNATIONAL SOCIETY FOR MANNOSIDO

EIN: 52-2164838San Jose, CAZIP: 95125
H80 - Medical Research501(c)(3)

Mission

THE INTERNATIONAL SOCIETY OF MANNOSIDOSIS AND RELATED DISEASES IS AN INTERNATIONALLY FOCUSED ORGANIZATION WHOSE MISSION IS TO ADVOCATE FOR FAMILIES AFFECTED BY ONE OF THE GLYCOPROTEIN STORAGE DISEASES:ALPHA MANNOSIDOSIS, ASPARTYLGLUCOSAMINURIA, BETA-MANNOSIDOSIS, FUCOSIDOSIS, GALACTOSIALIDOSIS,MUCOLIPIDOSIS II (I-CELL DISEASE), MUCOLIPIDOSIS III (PSEUDO-HURIER POLYDYSTROPHY), SCHINDLER DISEASE AND SIALIDOSIS. THESE DISEASES ARE THE ULTRA-ORPHANS OF THE LYSOSOMAL STORAGE DISEASE FAMILY, WHICH ENCOMPASS OVER 40 SIMILAR DISORDERS, AND CURRENTLY HAVE FEW TREATMENTS BEYOND SYMPTOMATIC CARE.ISMRD'S ADVOCACY EFFORTS ARE NOT LIMITED BY BORDERS, LANGUAGE, RACE OR RELIGION.

Financials

YearRevenueExpensesAssets
2024$43k$0$76k
2023$95k$0$89k

Compensation

2024

CAROLYN PAISLEY-DEW
President
chief executive officer
$0
$0
$0
$0
DANIELLE FORSMAN
Treasurer
officer (unspecified)
$0
$0
$0
$0
SARAH FORSMAN
Member
board member
$0
$0
$0
$0
DARKO JAMNIK
Member
board member
$0
$0
$0
$0
HUSSAIN PEERAN
Member
board member
$0
$0
$0
$0
LAMA KHALIL-QASHOU
Member
board member
$0
$0
$0
$0
LAUREL GREGIER
Member
board member
$0
$0
$0
$0
PATRICIA GRIBEL
Member
board member
$0
$0
$0
$0
TAREG QASHOU
Member
board member
$0
$0
$0
$0
CAGDAS CANBOLAT
Member
board member
$0
$0
$0
$0
ABBY MELONE
Member
board member
$0
$0
$0
$0
NATHAN HUBBARD
Secretary
officer (unspecified)
$0
$0
$0
$0
ERIN HUBBARD
Member
board member
$0
$0
$0
$0

2023

JOHN FORMAN
Member
board member
$0
$0
$0
$0
CAROLYN PAISLEY-DEW
President
chief executive officer
$0
$0
$0
$0
JENNY NOBLE
Member
board member
$0
$0
$0
$0
CAGDAS CANBOLAT
Member
board member
$0
$0
$0
$0
LAUREL GREGIER
Member
board member
$0
$0
$0
$0
DANIELLE FORSMAN
Treasurer
officer (unspecified)
$0
$0
$0
$0
MARK STARK
Member
board member
$0
$0
$0
$0
LAMA KHALIL-QASHOU
Member
board member
$0
$0
$0
$0
PAM TOBEY
Member
board member
$0
$0
$0
$0
DARKO JAMNIK
Member
board member
$0
$0
$0
$0
SARAH FORSMAN
Member
officer (unspecified)
$0
$0
$0
$0
HUSSAIN PEERAN
Member
board member
$0
$0
$0
$0
ABBY MELONE
Member
board member
$0
$0
$0
$0
PATRICIA GRIBEL
Member
board member
$0
$0
$0
$0
TAREG QASHOU
Member
board member
$0
$0
$0
$0

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