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Filing year 2023

NATIONAL UREA CYCLE DISORDERS FOUNDATION

Pasadena, California·EIN 41-1661444·NTEE E99Z · Health Care·501(c)(3)
Total revenue
$518k
Total assets
$1.2M
Total expenses
$193k
Reported officers
5
Mission

To save the lives & improve outcomes of individuals with urea cycle disorders (rare genetic inborn error of metabolism) by 1) driving & supporting critical research, 2) educating healthcare professionals on identification, diagnosis & treatment, 3)providing education information, resources & support to affected families & connecting those affected with support, 4) increasing publics awareness so no child or adult suffers or dies undiagnosed, 5) educating policy makers on the needs of affected individuals and families.

Executive compensation

Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2023

Percentile bands compare each position's total pay with the same role at Health Care organizations in California.

President
10th to 25th percentile
$45k
$50k
Secretary/treasurer
Officer (Unspecified)
$6k
$7k

Teal figures restate each filed amount in 2026 dollars.

Estimated with Los Angeles-Long Beach-Anaheim, CA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 3 unpaid individuals.

Browse compensation in Health Care

Pay in context

Top pay as a share of expenses

In 2023, the highest total compensation at NATIONAL UREA CYCLE DISORDERS FOUNDATION equaled 23% of the organization's total expenses. The median for health care organizations is 4%.

This organization (2023)
23%
Sector median
4%
Middle half of sector
1% to 13%

Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

FAQ

Common questions about NATIONAL UREA CYCLE DISORDERS FOUNDATION

What does the Chief Executive Officer of NATIONAL UREA CYCLE DISORDERS FOUNDATION earn?

In 2023, the Chief Executive Officer of NATIONAL UREA CYCLE DISORDERS FOUNDATION received $45,000 in total compensation. This pay is in the bottom quarter for Chief Executive Officer roles among Health Care organizations in California, above the lowest 10% of comparable filings. Based on IRS Form 990 data.

How does Chief Executive Officer pay at NATIONAL UREA CYCLE DISORDERS FOUNDATION compare with similar nonprofits?

Compared with the same role at Health Care organizations in California, the 2023 pay of the Chief Executive Officer at NATIONAL UREA CYCLE DISORDERS FOUNDATION falls between the 10th and 25th percentiles. In 2023, the highest total compensation at NATIONAL UREA CYCLE DISORDERS FOUNDATION equaled 23% of the organization's total expenses. The median for health care organizations is 4%.

What are NATIONAL UREA CYCLE DISORDERS FOUNDATION's revenue and expenses?

In 2023, NATIONAL UREA CYCLE DISORDERS FOUNDATION reported $518k in total revenue and $193k in total expenses on its IRS Form 990.

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