To save the lives & improve outcomes of individuals with urea cycle disorders (rare genetic inborn error of metabolism) by 1) driving & supporting critical research, 2) educating healthcare professionals on identification, diagnosis & treatment, 3)providing education information, resources & support to affected families & connecting those affected with support, 4) increasing publics awareness so no child or adult suffers or dies undiagnosed, 5) educating policy makers on the needs of affected individuals and families.
Executive compensation
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
| Base salary | Executive compensation | |
|---|---|---|
Secretary/treasurer officer (unspecified) $6k $7k | ||
Teal figures restate each filed amount in 2026 dollars.
Estimated with Los Angeles-Long Beach-Anaheim, CA metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 3 unpaid individuals.
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