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NATIONAL UREA CYCLE DISORDERS FOUNDATION

EIN: 41-1661444Pasadena, CAZIP: 91105
E99Z - Health Care501(c)(3)

Mission

To save the lives & improve outcomes of individuals with urea cycle disorders (rare genetic inborn error of metabolism) by 1) driving & supporting critical research, 2) educating healthcare professionals on identification, diagnosis & treatment, 3)providing education information, resources & support to affected families & connecting those affected with support, 4) increasing publics awareness so no child or adult suffers or dies undiagnosed, 5) educating policy makers on the needs of affected individuals and families.

Financials

YearRevenueExpensesAssets
2023$518k$0$1.2M

Compensation

Tresa Warner
President
chief executive officer
$0
$0
$0
$45,000
Eva Oseland
Secretary/Treasurer
officer (unspecified)
$0
$0
$0
$6,319
Amanda Sonntag
Board Member
board member
$0
$0
$0
$0
Lori Shockey
Board Member
board member
$0
$0
$0
$0
Mary Alice O'Malley
Board Member
board member
$0
$0
$0
$0

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Data from IRS Form 990 filings (2023).