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Filing year 2024

NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC

Durham, North Carolina·EIN 81-4269135·NTEE H12 · Medical Research·501(c)(3)
Total revenue
$40k
Total assets
$4k
Total expenses
$123k
Reported officers
1

Executive compensation

Form 990-EZ · Part IV · 1 reported individual · Filing year 2024

Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.

President
Board President
Median to 75th percentile
$85k
$90k

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Browse compensation in Medical Research

Pay in context

Top pay as a share of expenses

In 2024, the highest total compensation at NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC equaled 69% of the organization's total expenses. The median for medical research organizations is 10%.

This organization (2024)
69%
Sector median
10%
Middle half of sector
4% to 21%

Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Top compensation, year by year

From $21k in 2023 to $85k in 2024.

$21k
2023
$85k
2024
In today's dollarsEst.
Up 304% in real terms$22k to $90k

Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Pay for the position

Board President pay rose 316% from 2023 to 2024, while revenue fell 77%.

$21k in 2023 to $85k in 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Financial trend

Revenue and expenses over time

NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC reported revenue and expenses across 2 filing years.

RevenueExpenses
$171k
$139k
2023
$40k
$123k
2024
Total revenue and total expenses from IRS Form 990 filings.
Sector benchmark

What Medical Research executives earn

Comparable medical research organizations nationwide pay their highest-earning executive a median of $120,264.

25th percentile
$48k
Median
$120,264
75th percentile
$252k
90th percentile
$466k

These are medical research sector-wide figures, not this organization's reported pay. Based on 1,118 organizations across 1,118 filings (2020 – 2024).

See full Medical Research compensation data
FAQ

Common questions about NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC

What does the Board President of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC earn?

In 2024, the Board President of NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC received $85,200 in total compensation. This pay is above the median (the midpoint) for Board President roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.

How does Board President pay at NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC compare with similar nonprofits?

Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Board President at NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC falls between the median and the 75th percentile. In 2024, the highest total compensation at NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC equaled 69% of the organization's total expenses. The median for medical research organizations is 10%.

What are NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC's revenue and expenses?

In 2024, NORTH CAROLINA RARE DISEASE INNOVATIONS INSTITUTE INC reported $40k in total revenue and $123k in total expenses on its IRS Form 990.

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