RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at nonprofits nationwide, across all sectors.
| Position | Total |
|---|---|
Chairman Board Chair Median to 75th percentile | $36k $38k |
Treasurer 25th percentile to median | $36k $38k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 2 unpaid individuals.
Down 80%
from 2023
From $183k in 2023 to $36k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Board Chair pay fell 80% from 2023 to 2024, while revenue rose 235%.
- Chief Financial Officer pay fell 73% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Revenue and expenses over time
Rare Access Action Project Inc reported revenue and expenses across 2 filing years.
Common questions about Rare Access Action Project Inc
What does the Board Chair of Rare Access Action Project Inc earn?
In 2024, the Board Chair of Rare Access Action Project Inc received $36,000 in total compensation. This pay is above the median (the midpoint) for Board Chair roles among nonprofits nationwide, across all sectors, within the top half of comparable filings. Based on IRS Form 990 data.
How does Board Chair pay at Rare Access Action Project Inc compare with similar nonprofits?
Compared with the same role at nonprofits nationwide, across all sectors, the 2024 pay of the Board Chair at Rare Access Action Project Inc falls between the median and the 75th percentile.
What are Rare Access Action Project Inc's revenue and expenses?
In 2024, Rare Access Action Project Inc reported $710k in total revenue and $358k in total expenses on its IRS Form 990.
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