THE RARE CANCER RESEARCH FOUNDATION IS DEDICATED TO CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS AND COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH AND ACCELERATE DEPLOYMENT OF PROMISING THERAPIES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 8 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $190k
- Bonus
- —
- Other
- —
- Benefits
- $5k
- Base
- $162k
- Bonus
- —
- Other
- —
- Benefits
- $5k
- Base
- $150k
- Bonus
- —
- Other
- —
- Benefits
- $12
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President Median to 75th percentile | $190k | — | — | $5k | $195k $207k |
Dir Data Pla Key Employee 10th to 25th percentile | $162k | — | — | $5k | $168k $178k |
Biobank Mana Highest Compensated Employee 25th percentile to median | $150k | — | — | $12 | $150k $159k |
Dir Strategi Highest Compensated Employee 25th percentile to median | — | — | — | — | $145k $153k |
Prod Enginee Highest Compensated Employee 25th percentile to median | — | — | — | — | $136k $144k |
Pres. of Pat Officer (Unspecified) | — | — | — | — | $120k $127k |
Technical Fe Highest Compensated Employee Below 10th percentile | — | — | — | — | $107k $113k |
Clinical Dat Officer (Unspecified) | — | — | — | — | $102k $108k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 3 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at RARE CANCER RESEARCH FOUNDATION equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Held steady
from 2023
From $194k in 2023 to $195k in 2024.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay held roughly steady from 2023 to 2024, while revenue fell 49%.
- Highest Compensated Employee pay rose 6% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about RARE CANCER RESEARCH FOUNDATION
What does the Chief Executive Officer of RARE CANCER RESEARCH FOUNDATION earn?
In 2024, the Chief Executive Officer of RARE CANCER RESEARCH FOUNDATION received $194,903 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at RARE CANCER RESEARCH FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at RARE CANCER RESEARCH FOUNDATION falls between the median and the 75th percentile. In 2024, the highest total compensation at RARE CANCER RESEARCH FOUNDATION equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
What are RARE CANCER RESEARCH FOUNDATION's revenue and expenses?
In 2024, RARE CANCER RESEARCH FOUNDATION reported $1.8M in total revenue and $2.2M in total expenses on its IRS Form 990.
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