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Filing year 2024

Smith-Kingsmore Syndrome Foundation

Cincinnati, Ohio·EIN 84-2913037·NTEE G80 · Diseases, Disorders & Medical Disciplines·3
Total revenue
$168k
Total assets
$271k
Total expenses
$166k
Reported officers
9
Mission

Fund research to better understand Smith-Kingsmore syndrome and find treatments to improve patient quality of life and, ultimately, a cure.

Executive compensation

Form 990 · Schedule J · 2 reported individuals · Filing year 2024

Director of Development
$36k
$39k
Executive Director
$23k
$24k

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 7 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines

Down 60%
from 2023

From $90k in 2023 to $36k in 2024.

$90k
2023
$36k
2024
In today's dollarsEst.
Down 61% in real terms$99k to $39k

Estimated with BLS CPI-U for the Midwest region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Financial trend

Revenue and expenses over time

Smith-Kingsmore Syndrome Foundation reported revenue and expenses across 2 filing years.

RevenueExpenses
$172k
$349k
2023
$168k
$166k
2024
Total revenue and total expenses from IRS Form 990 filings.
Sector benchmark

What Diseases, Disorders & Medical Disciplines executives earn

Comparable diseases, disorders & medical disciplines organizations nationwide pay their highest-earning executive a median of $89,225.

25th percentile
$42k
Median
$89,225
75th percentile
$171k
90th percentile
$311k

These are diseases, disorders & medical disciplines sector-wide figures, not this organization's reported pay. Based on 619 organizations across 619 filings (2021 – 2023).

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