Reported officers (all unpaid)
No paid executives reported in 2024. THE ALEXION CHARITABLE FOUNDATION INC reported 6 unpaid officers and board members on its 990-PF.
President (as of 04/24)
Clerk & Board Member
Board Member
Board Member
Chairperson & Board Member
Treasurer & Board Member
Grants paid
Itemized grants reported on this foundation's 2024 Form 990-PF, Part XV.
Total granted
$810k
Itemized grants
8
Median grant
$100k
| Recipient | Location | Purpose | Amount |
|---|---|---|---|
| GIVE AN HOUR | CLARKSBURG, MD | THE GRANT WILL SUPPORT THE PROJECT TITLED CARE FOR CAREGIVERS: CARECONNECT: STRENGTHENING PEER & CLINICAL MENTAL HEALTH SUPPORT FOR RARE DISEASE CAREGIVERS PROGRAM WHICH AIMS TO STRENGTHEN THE CONTINUUM OF MENTAL HEALTH SUPPORT FOR CAREGIVERS WITHIN RARE DISEASE COMMUNITIES BY EXPANDING BOTH NONCLINICAL AND CLINICAL RESOURCES. THROUGH PARTNERSHIPS WITH RARE-SERVING ORGANIZATIONS, WE WILL ENHANCE CAREGIVER SUPPORT SYSTEMS WHILE DELIVERING SPECIALIZED TRAINING TO MENTAL HEALTH PROFESSIONALS TO ADDRESS THE COMPLEX EMOTIONAL AND PSYCHOLOGICAL CHALLENGES CAREGIVERS FACE. ADDITIONALLY, CRISIS SUPPORT PROTOCOLS WILL BE ESTABLISHED TO ENSURE SWIFT, EFFECTIVE INTERVENTIONS DURING EMERGENCIES, FOSTERING LONG-TERM RECOVERY AND RESILIENCE. | $200k |
| LIFE LITERACY CANADA | ONTARIO, CA | THE GRANT WILL SUPPORT THE PROJECT TITLED ABC HEALTH MATTERS: MANAGING RARE DISEASES AND CHRONIC HEALTH ISSUES FOR THE FOLLOWING PURPOSE: ABC HEALTH MATTERS IS AN INTRODUCTORY HEALTH LITERACY PROGRAM THAT EMPOWERS CANADIANS TO MANAGE THEIR HEALTH MORE EFFECTIVELY BY INCREASING THEIR CONFIDENCE WHEN TALKING ABOUT AND MAKING DECISIONS REGARDING HEALTH ISSUES WITH FAMILY, FRIENDS, AND HEALTH PROFESSIONALS. ABC SEEKS TO DEVELOP A NEW STREAM OF THE ABC HEALTH MATTERS PROGRAM DESIGNED TO MEET THE NEEDS OF FAMILIES IMPACTED BY RARE DISEASES AND CHRONIC HEALTH ISSUES. THE PROGRAM WILL INCLUDE TWO NEW TARGETED WORKBOOKS, COURSES ON THEIR CUSTOM LEARNING PLATFORM (THE ABC SKILLS HUB), OUTREACH TO COMMUNITY ORGANIZATIONS AND HEALTH CARE PROFESSIONALS, A DEDICATED PROGRAM LANDING PAGE, AND COMMUNICATIONS AND PROMOTIONAL ACTIVITIES TO RAISE AWARENESS ABOUT PROGRAM OFFERINGS. | $150k |
| PATIENT AIRLIFT SERVICES (PALS) | FARMINGDALE, NY | THE GRANT WILL SUPPORT THE PALS MISSION OF HELPING PEOPLE WITH TRANSPORTATION NEEDS FOR PEOPLE AFFECTED BY RARE DISEASES. PALS ARRANGES FREE AIR TRANSPORTATION FOR INDIVIDUALS LIVING WITH OR AFFECTED BY RARE DISEASE TO ACCESS OUT-OF-TOWN MEDICAL DIAGNOSIS, TREATMENT, AND FOLLOW-UP, AS WELL AS TO ATTEND RARE DISEASE CONFERENCES AND SOCIAL/EDUCATION EVENTS THROUGHOUT THE US. THE GRANT WILL FUND THE PROVISION OF ROUGHLY 450+ FLIGHTS NATIONALLY FOR RARE DISEASE PATIENTS, CAREGIVERS, AND FAMILIES (INCLUDING GROUND TRANSPORTATION BETWEEN THE AIRPORT AND TREATMENT DESTINATION), AS WELL AS OUTREACH TO PROMOTE THE AVAILABILITY OF THESE SERVICES TO THE RARE DISEASE COMMUNITY. | $150k |
| ANGEL FLIGHT OF NEW ENGLAND | NORTH ANDOVER, MA | ONGOING GRANT IN SUPPORT OF ANGEL FLIGHT NES MISSION/FLIGHT COORDINATION: HEALING JOURNEYS FOR RARE DISEASES PROGRAM WILL ALLOW THEM TO CONTINUE THEIR SUPPORT OF PATIENT AND OUTREACH ACTIVITIES, ENABLING MORE PATIENTS AND FAMILIES TO RECEIVE SUPPORT IN ACCESSING AERIAL TRANSPORTATION FOR MEDICAL TREATMENTS NOT AVAIALABLE IN THEIR GEOGRAPHICAL AREAS. PARTICIPATING IN EXPANDED MARKETING TO VARIOUS RARE/ULTRA-RARE GROUPS TO PARTNER AND EDUCATE THEM ON ANGEL FLIGHT NES FREE AIR TRANSPORTATION SERVICES IS PIVOTAL TO CONTINUED GROWTH. | $100k |
| BOSTON CHILDREN'S HOSPITAL | BOSTON, MA | THE GRANT WILL SUPPORT THE PROJECT TITLED RAINBOW/KASA PROGRAM WHICH IS BOSTON CHILDREN'S HOSPITAL'S PRIMARY-CARE MEDICAL HOME FOR HIGHLY COMPLEX CHILDREN, OVER 50% OF WHOM HAVE RARE DISEASES. THE DEMAND FOR THE RAINBOW/KASA PROGRAM HAS GROWN SUBSTANTIALLY IN RECENT YEARS DUE TO HIGH QUALITY CARE COORDINATION SERVICES AND ABILITY TO MANAGE A POPULATION THAT OTHER MEDICAL HOMES CANNOT. THIS INITIATIVE - IMPROVING ACCESS TO COMPLEX PRIMARY CARE SERVICES - WILL ALLOW TO ENSURE MAXIMAL ACCESS FOR NEW PATIENTS TO THE PROGRAM, ENSURING THAT NEW PATIENTS CAN BE SEEN QUICKLY AND APPROPRIATELY WITH FULL SOCIAL AND MEDICAL ASSESSMENTS AND CONNECTION TO HOME AND HOSPITAL-BASED MEDICAL SUPPORTS. IN ADDITION, THIS INITIATIVE WILL ALLOW TO INCREASE OUR URGENT CARE SERVICES FOR RAINBOW/KASA PATIENTS, ENSURING THAT MORE PATIENTS CAN BE SEEN EACH DAY BY PROVIDERS EXPERT IN COMPLEX CARE. | $100k |
| THE CHILDREN'S INN AT NIH | BETHESDA, MD | THE CHARITABLE PURPOSE OF THE GRANT IS TO SUPPORT THE CAMPAIGN FOR THE CHILDREN'S INN AT NIH, A CAPITAL CAMPAIGN TO TRANSFORM ITS RESIDENTIAL FACILITY INTO A STATE-OF-THE-ART ENVIRONMENT TO SERVE MORE YOUNG PEOPLE AND THEIR FAMILIES, KEEP PACE WITH THE NIH'S GROWTH AND DISCOVERY, AND MEET THE CHANGING NEEDS OF RESIDENTS AND PEDIATRIC MEDICAL RESEARCH. | $75k |
| THE AKARI FOUNDATION | SAN ANTONIO, TX | THE GRANT WILL SUPPORT THE PROJECT TITLED RARE DISEASE SUPPORT INITIATIVE FOR THE PURPOSE ENHANCING ACCESS TO CARE FOR HISPANIC FAMILIES AFFECTED BY RARE DISEASES BY ADDRESSING CRITICAL BARRIERS SUCH AS MOBILITY, LANGUAGE, AND FINANCIAL CONSTRAINTS. THE PROGRAM WILL PROVIDE ESSENTIAL RESOURCES, INCLUDING TRAVEL ASSISTANCE, EDUCATIONAL INITIATIVES, AND CULTURALLY COMPETENT SUPPORT SERVICES, ENSURING THAT UNDERSERVED POPULATIONS RECEIVE TIMELY DIAGNOSES AND EQUITABLE ACCESS TO HEALTHCARE. BY LEVERAGING THEIR EXPERTISE IN SERVING THE HISPANIC COMMUNITY, AKARI FOUNDATION AIMS TO EMPOWER FAMILIES AND IMPROVE HEALTH OUTCOMES THROUGH TARGETED OUTREACH AND ADVOCACY EFFORTS. | $25k |
| STARVISTAS EARLY CHILDHOOD PROGRAMMING | SAN CARLOS, CA | THE GRANT WILL SUPPORT THE PROJECT TITLED, EARLY CHILDHOOD PROGRAMMING: EARLY CONNECTIONS FOR NURTURING RESILIENT FAMILIES AND THRIVING CHILDREN WHICH COMMITS TO SUPPORTING FAMILIES WITH YOUNG CHILDREN, HELPING THEM OVERCOME LIFE'S CHALLENGES SUCH AS: MITIGATE THE EFFECTS OF FAMILY RISK FACTORS, TRAUMA, AND TOXIC STRESS. ENHANCE PARENTS AND CAREGIVERS' CAPACITY AND KNOWLEDGE TO CARE FOR THEIR CHILDREN. MENTAL HEALTH SERVICES FOR CHILDREN AND CAREGIVERS. EDUCATIONAL WORKSHOPS, TRAINING AND CONSULTATION FOR CHILDCARE PROVIDERS TO ENSURE THEY HAVE THE NECESSARY KNOWLEDGE AND SUPPORT ADDITIONALLY, PROVIDING SERVICES THROUGH VARIOUS MEANS, INCLUDING IN PERSON AT LOCATIONS ACROSS THE COUNTY, IN CLIENT HOMES, VIA PHONE, AND VIRTUALLY, TO INCREASE ACCESSIBILITY. | $10k |
Financial trend
Revenue and expenses over time
THE ALEXION CHARITABLE FOUNDATION INC reported revenue and expenses across 2 filing years.
RevenueExpenses
$2k
$2.1M
2023
$2k
$1M
2024
Total revenue and total expenses from IRS Form 990 filings.
This is a private foundation. Peers are foundations of similar asset size ($1M - $10M), because foundation pay scales with assets under management, not revenue.
Sector benchmark
What Philanthropy, Voluntarism & Grantmaking executives earn in Massachusetts
THE ALEXION CHARITABLE FOUNDATION INC reported no executive compensation in its latest filing. For context, the highest-paid executive at a comparable philanthropy, voluntarism & grantmaking organization in Massachusetts earns a median of $17,596.
25th percentile
$5k
Median
$17,596
75th percentile
$66k
90th percentile
$171k
These are philanthropy, voluntarism & grantmaking sector-wide figures, not this organization's reported pay. Based on 925 organizations across 925 filings (2021 – 2024).
See full Philanthropy, Voluntarism & Grantmaking pay data for Massachusetts →FAQ
Common questions about THE ALEXION CHARITABLE FOUNDATION INC
What are THE ALEXION CHARITABLE FOUNDATION INC's revenue and expenses?
In 2024, THE ALEXION CHARITABLE FOUNDATION INC reported $2k in total revenue and $1M in total expenses on its IRS Form 990.
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This is a private foundation. Peers are foundations of similar asset size ($1M - $10M), because foundation pay scales with assets under management, not revenue.
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