The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
- Base
- $181k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Executive Dir. Officer (Unspecified) | $181k | — | — | — | $181k $193k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Baltimore-Columbia-Towson, MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 17 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at The Myositis Association equaled 10% of the organization's total expenses. The median for human services organizations is 8%.
Based on 26,698 human services organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Down 1%
from 2023
From $183k in 2023 to $181k in 2024.
Estimated with Baltimore-Columbia-Towson, MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about The Myositis Association
What are The Myositis Association's revenue and expenses?
In 2024, The Myositis Association reported $2M in total revenue and $1.8M in total expenses on its IRS Form 990.
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