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UNDIAGNOSED DISEASES NETWORK FOUNDATION

EIN: 87-3474254Washington, DCZIP: 20005
G12 - Diseases, Disorders & Medical Disciplines501(c)(3)

Mission

THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.

Financials

YearRevenueExpensesAssets
2024$329k$0$1.4M
2023$2.6M$0$2.4M

Compensation

2024

AMY GRAY
CEO
chief executive officer
$352,756
$0
$0
$352,756
STEPHANIE TOMLINSON
Board Member
board member
$0
$0
$0
$1,554
MEGHAN HALLEY
Board Chairman
board chair
$0
$0
$0
$0
TROY EVANS
Treasurer
officer (unspecified)
$0
$0
$0
$0
EFFIE PARKS
Board Member
board member
$0
$0
$0
$0
TOM KELLEY
Board Member
board member
$0
$0
$0
$0
GERALD SWEENEY
Board Member
board member
$0
$0
$0
$0
LILIANA FERNANDEZ
Board Member
board member
$0
$0
$0
$0
STEPHAN ZUCHNER
Board Member
board member
$0
$0
$0
$0
TANIA SIMONCELLI
Board Member
board member
$0
$0
$0
$0
JESSICA SWANSON
Borad Member
board member
$0
$0
$0
$0
PARVATHY KRISHNAN
Board Member
board member
$0
$0
$0
$0
KELLY CERVENTES
Board Member
board member
$0
$0
$0
$0
F SESSIONS COLE
Secretary
officer (unspecified)
$0
$0
$0
$0
ANNE PARISER
Board Member
board member
$0
$0
$0
$0
SIKA DUNYOH
Board Member
board member
$0
$0
$0
$0

2023

AMY GRAY
CEO
chief executive officer
$0
$0
$0
$95,146
TROY EVANS
Treasurer
officer (unspecified)
$0
$0
$0
$0
STEPHAN ZUCHNER
Board Member
board member
$0
$0
$0
$0
LILIANA FERNANDEZ
Board Member
board member
$0
$0
$0
$0
HELENE CEDERROTH
Vice Chairman
board vice chair
$0
$0
$0
$0
MEGHAN HALLEY
Board Chairman
board chair
$0
$0
$0
$0
F SESSIONS COLE
Secretary
officer (unspecified)
$0
$0
$0
$0
TOM KELLEY
Board Member
board member
$0
$0
$0
$0
GERALD SWEENEY
Board Member
board member
$0
$0
$0
$0
TANIA SIMONCELLI
Board Member
board member
$0
$0
$0
$0
PARVATHY KRISHNAN
Board Member
board member
$0
$0
$0
$0
EFFIE PARKS
Board Member
board member
$0
$0
$0
$0
ANNE PARISER
Board Member
board member
$0
$0
$0
$0
SIKA DUNYOH
Board Member
board member
$0
$0
$0
$0

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