THE UDNF'S MISSION IS TO IMPROVE ACCESS TO DIAGNOSIS, RESEARCH, AND CARE FOR ALL WITH UNDIAGNOSED AND ULTRA-RARE CONDITIONS. WE AIM TO FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, AND SCIENTISTS TO ENHANCE THE QUALITY OF LIFE OF UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS TO EQUITY AND ACCESS IN HEALTHCARE; SETTING STANDARDS FOR PATIENT MANAGEMENT; AND BRIDGING DIAGNOSIS AND THERAPEUTICS AS WELL AS RESEARCH AND CLINICAL CARE IN UNDIAGNOSED AND ULTRA-RARE DISEASES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $353k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
CEO Above 90th percentile | $353k | — | — | — | $353k $375k |
Board Member Below 10th percentile | — | — | — | — | $2k $2k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 14 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at UNDIAGNOSED DISEASES NETWORK FOUNDATION equaled 25% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Top compensation, year by year
From $95k in 2023 to $353k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 271% from 2023 to 2024, while revenue fell 87%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about UNDIAGNOSED DISEASES NETWORK FOUNDATION
What does the Chief Executive Officer of UNDIAGNOSED DISEASES NETWORK FOUNDATION earn?
In 2024, the Chief Executive Officer of UNDIAGNOSED DISEASES NETWORK FOUNDATION received $352,756 in total compensation. This pay is in the top 10% for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations nationwide: at least 9 in 10 comparable filings report less. Based on IRS Form 990 data.
How does Chief Executive Officer pay at UNDIAGNOSED DISEASES NETWORK FOUNDATION compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Chief Executive Officer at UNDIAGNOSED DISEASES NETWORK FOUNDATION falls in the top 10%. In 2024, the highest total compensation at UNDIAGNOSED DISEASES NETWORK FOUNDATION equaled 25% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are UNDIAGNOSED DISEASES NETWORK FOUNDATION's revenue and expenses?
In 2024, UNDIAGNOSED DISEASES NETWORK FOUNDATION reported $329k in total revenue and $1.4M in total expenses on its IRS Form 990.
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