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UNITED LEUKODYSTROPHY FOUNDATION INC

EIN: 35-1557361DeKalb, ILZIP: 60115
501(c)(3)

Mission

The United Leukodystrophy Foundation is dedicated to helping children and adults who have Leukodystrophy and assisting family members, professionals and support services that serve them. The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.

Financials

YearRevenueExpensesAssets
2023$730k$0$1.5M

Compensation

Diane Fennimore
Executive Director
chief executive officer
$0
$0
$0
$28,150
Ron Chapleau
President
chief executive officer
$0
$0
$0
$0
John Kaprich
Director
board member
$0
$0
$0
$0
Donna Skwirut
Treasurer
officer (unspecified)
$0
$0
$0
$0
Shannon Reed
Secretary
officer (unspecified)
$0
$0
$0
$0
Mousumi Bose
Director
board member
$0
$0
$0
$0
Margaret Mcintyre
Director
board member
$0
$0
$0
$0
Marilyn Schmiedel
Director
board member
$0
$0
$0
$0
Amber Freed
Director
board member
$0
$0
$0
$0
Gregory Huffer
Director
board member
$0
$0
$0
$0
Marcie Flores
Director
board member
$0
$0
$0
$0
Dr Stephanie Keller
Vice President
vice president
$0
$0
$0
$0
Dr Joseph Hacia
Director
board member
$0
$0
$0
$0

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Learn more

Data from IRS Form 990 filings (2023).