TO IMPROVE THE QUALITY OF LIFE OF THOSE PERSONS WITH XERODERMA PIGMENTOSUM AND OTHER DIAGNOSED ULTRAVIOLET LIGHT SENSITIVE CONDITIONS BY PROVIDING SUPPORT, ULTRAVIOLET PROTECTIVE EQUIPMENT AND OTHER ASSISTANCE.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
Co-executive Director Director (Operational) Below 10th percentile | $25k $27k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the West region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 10 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP equaled 17% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Held steady
from 2023
From $25k in 2023 to $25k in 2024.
Estimated with BLS CPI-U for the West region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP
What does the Director (Operational) of XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP earn?
In 2024, the Director (Operational) of XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP received $25,000 in total compensation. This pay is in the bottom 10% for Director (Operational) roles among Medical Research organizations nationwide: at least 9 in 10 comparable filings report more. Based on IRS Form 990 data.
How does Director (Operational) pay at XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Director (Operational) at XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP falls in the bottom 10%. In 2024, the highest total compensation at XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP equaled 17% of the organization's total expenses. The median for medical research organizations is 10%.
What are XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP's revenue and expenses?
In 2024, XERODERMA PIGMENTOSUM FAMILY SUPPORT GROUP reported $85k in total revenue and $147k in total expenses on its IRS Form 990.
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