The mission of Chelsea's Hope is to improve the lives of those affected by Lafora disease and to help accelerate the development of treatments. We do this by raising awareness, hosting educational events, and supporting research efforts for Lafora disease.
Executive compensation
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
Executive Director (top Management) 25th percentile to median | $67k $71k |
Finance Director & Executive Director (top Management) 10th to 25th percentile | $53k $56k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 6 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND equaled 10% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND
What does the Chief Executive Officer of CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND earn?
In 2024, the Chief Executive Officer of CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND received $66,796 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND falls between the 25th percentile and the median. In 2024, the highest total compensation at CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND equaled 10% of the organization's total expenses. The median for medical research organizations is 10%.
What are CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND's revenue and expenses?
In 2024, CHELSEAS HOPE LAFORA CHILDREN RESEARCH FUND reported $258k in total revenue and $679k in total expenses on its IRS Form 990.
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