To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $139k
- Bonus
- —
- Other
- —
- Benefits
- $17k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Exe Dir/pres Officer (Unspecified) | $139k | — | — | $17k | $161k $171k |
Chief Science Officer (Unspecified) | — | — | — | — | $146k $155k |
Vice President Median to 75th percentile | — | — | — | — | $123k $130k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 7 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at Cure Sanfilippo Foundation equaled 10% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Held steady
from 2023
From $163k in 2023 to $161k in 2024.
Estimated with BLS CPI-U for the South region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Vice President pay rose 4% from 2023 to 2024, while revenue rose 32%.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about Cure Sanfilippo Foundation
What does the Vice President of Cure Sanfilippo Foundation earn?
In 2024, the Vice President of Cure Sanfilippo Foundation received $122,727 in total compensation. This pay is above the median (the midpoint) for Vice President roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Vice President pay at Cure Sanfilippo Foundation compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Vice President at Cure Sanfilippo Foundation falls between the median and the 75th percentile. In 2024, the highest total compensation at Cure Sanfilippo Foundation equaled 10% of the organization's total expenses. The median for medical research organizations is 10%.
What are Cure Sanfilippo Foundation's revenue and expenses?
In 2024, Cure Sanfilippo Foundation reported $2.8M in total revenue and $1.6M in total expenses on its IRS Form 990.
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