Mission
To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Executive compensation, broken down
Form 990 · Schedule J · 3 reported individuals · Filing year 2024
Base salaryBonusOther compensationBenefits
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Exe Dir/pres officer (unspecified) $161k | |||||
Chief Science officer (unspecified) $146k | |||||
Vice President vice president $123k | |||||
Plus 7 unpaid individuals.
Held steady
from 2023
From $163k in 2023 to $161k in 2024.
$163k
2023
$161k
2024
$163k
2023
$161k
2024
Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
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