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Cure Sanfilippo Foundation

EIN: 46-4322131Columbia, SCZIP: 29260
H80 - Medical Research501(c)(3)

Mission

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Financials

YearRevenueExpensesAssets
2024$2.8M$0$13.9M
2023$2.1M$0$11.2M

Compensation

2024

Glenn O'Neill
Exe Dir/pres
officer (unspecified)
$139,049
$0
$0
$161,106
Cara O'Neill
Chief Science
officer (unspecified)
$0
$0
$0
$146,196
Katie Walton
Vice President
vice president
$0
$0
$0
$122,727
Daniel Fraley
Board Chair
board chair
$0
$0
$0
$0
Adam Shaywitz
Director
board member
$0
$0
$0
$0
Faith McAngus
Director
board member
$0
$0
$0
$0
Shelby Leonardi
Secretary
officer (unspecified)
$0
$0
$0
$0
Jessica Haywood
Director
board member
$0
$0
$0
$0
Ben Von Wong
Director
board member
$0
$0
$0
$0
Mike Lykes
Director
board member
$0
$0
$0
$0

2023

Glenn O'Neill
Exe Dir/Pres
officer (unspecified)
$136,354
$0
$0
$162,639
Cara O'Neill
Chief Science
officer (unspecified)
$0
$0
$0
$122,382
Katie Walton
Vice President
vice president
$0
$0
$0
$117,758
Shelby Leonardi
Secretary
officer (unspecified)
$0
$0
$0
$0
Valerie Byers
Director
board member
$0
$0
$0
$0
Ben Von Wong
Director
board member
$0
$0
$0
$0
Adam Shaywitz
Director
board member
$0
$0
$0
$0
Faith McAngus
Director
board member
$0
$0
$0
$0
Jessica Haywood
Director
board member
$0
$0
$0
$0
Daniel Fraley
Board Chair
board chair
$0
$0
$0
$0

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