The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 3 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Philanthropy, Voluntarism & Grantmaking organizations nationwide.
- Base
- $170k
- Bonus
- $3k
- Other
- —
- Benefits
- —
- Base
- $165k
- Bonus
- $500
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Executive Director Median to 75th percentilevs Philanthropy, Voluntarism & Grantmaking peers in New Jersey | $170k | $3k | — | — | $173k $186k |
Scientific Director Highest Compensated Employee Median to 75th percentile | $165k | $500 | — | — | $165k $178k |
Finance & Program Director Median to 75th percentile | — | — | — | — | $109k $117k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 10 unpaid individuals.
Browse compensation in Philanthropy, Voluntarism & Grantmaking →
Top pay as a share of expenses
In 2024, the highest total compensation at DRAVET SYNDROME FOUNDATION INC equaled 4% of the organization's total expenses. The median for philanthropy, voluntarism & grantmaking organizations is 15%.
Based on 35,946 philanthropy, voluntarism & grantmaking organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 10%
from 2023
From $156k in 2023 to $173k in 2024.
Estimated with Philadelphia-Camden-Wilmington, PA-NJ-DE-MD metro-area CPI-U, restating filed pay into April 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 10% from 2023 to 2024, while revenue rose 30%.
- Highest Compensated Employee pay rose 7% from 2023 to 2024.
- Chief Financial Officer pay rose 7% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about DRAVET SYNDROME FOUNDATION INC
What does the Chief Executive Officer of DRAVET SYNDROME FOUNDATION INC earn?
In 2024, the Chief Executive Officer of DRAVET SYNDROME FOUNDATION INC received $172,586 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Philanthropy, Voluntarism & Grantmaking organizations in New Jersey, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at DRAVET SYNDROME FOUNDATION INC compare with similar nonprofits?
Compared with the same role at Philanthropy, Voluntarism & Grantmaking organizations in New Jersey, the 2024 pay of the Chief Executive Officer at DRAVET SYNDROME FOUNDATION INC falls between the median and the 75th percentile. In 2024, the highest total compensation at DRAVET SYNDROME FOUNDATION INC equaled 4% of the organization's total expenses. The median for philanthropy, voluntarism & grantmaking organizations is 15%.
What are DRAVET SYNDROME FOUNDATION INC's revenue and expenses?
In 2024, DRAVET SYNDROME FOUNDATION INC reported $4.2M in total revenue and $4.3M in total expenses on its IRS Form 990.
Compare any role, sector, or revenue band
Build your own benchmark from millions of reported positions.
Learn More About Nonprofit Compensation
Guides to help you understand and use this data
Nonprofit CFO Salary
What nonprofit CFOs earn, what drives the number, and how to use public compensation data in a job search or negotiation.
Read moreNonprofit Executive Director Salary
What nonprofit executive directors earn, what drives the number, and how to use public compensation data whether you are a candidate, a current ED, or a board member.
Read moreHow to Look Up Nonprofit Salaries
Two approaches to finding executive compensation at any tax-exempt organization, from raw IRS filings to searchable databases.
Read more