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DRAVET SYNDROME FOUNDATION INC

EIN: 27-0924627Cherry Hill, NJZIP: 08034
T30 - Philanthropy, Voluntarism & Grantmaking Foundations501(c)(3)

Mission

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

Financials

YearRevenueExpensesAssets
2024$4.2M$0$8.5M
2023$3.3M$0$7.5M

Compensation

2024

Mary Anne Meskis
$169,586
$3,000
$0
$172,586
Veronica Hood
$164,959
$500
$0
$165,459
Ted Odlaug PhD
$0
$0
$0
$0
Ross Nicholas
$0
$0
$0
$0
Claire Carey
$0
$0
$0
$0
Josh Goldman
$0
$0
$0
$0
Nathan Batt
$0
$0
$0
$0
Ashley Kerns
$0
$0
$0
$0
Joseph Sullivan MD
$0
$0
$0
$0
Bill Kirshner
$0
$0
$0
$0
Gail Farfel
$0
$0
$0
$0
Amanda Prather
$0
$0
$0
$0

2023

Mary Anne Meskis
$157,248
$2,000
$0
$156,224
Veronica Hood
$157,248
$250
$0
$154,474
Nathan Batt
$0
$0
$0
$0
Joseph Sullivan MD
$0
$0
$0
$0
Ashley Kerns
$0
$0
$0
$0
Gail Farfel
$0
$0
$0
$0
Ted Odlaug PhD
$0
$0
$0
$0
Ross Nicholas
$0
$0
$0
$0
Claire Carey
$0
$0
$0
$0
Brad Galer
$0
$0
$0
$0
Bill Kirshner
$0
$0
$0
$0
Josh Goldman
$0
$0
$0
$0

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Data from IRS Form 990 filings (2023-2024).