Mission
Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.
Reported officers (all unpaid)
No paid executives reported in 2024. Finding Hope for FRRS1L reported 6 unpaid officers and board members on its 990.
President
Vice President
Secretary
Director
Director
Director
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