TO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOVERNMENT AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.
Executive compensation, broken down
Form 990 · Schedule J · 6 reported individuals · Filing year 2023
- Base
- $250k
- Bonus
- —
- Other
- —
- Benefits
- $849
- Base
- $168k
- Bonus
- —
- Other
- —
- Benefits
- $884
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Scientific Officer highest compensated employee | $250k | — | — | $849 | $258k $283k |
Chief Executive Officer | $168k | — | — | $884 | $174k $190k |
Director of Research highest compensated employee | — | — | — | — | $127k $140k |
President/director | — | — | — | — | $118k $130k |
VP Fundraising & Comms vice president | — | — | — | — | $114k $125k |
Treasurer/director Finance Admin & HR officer (unspecified) | — | — | — | — | $61k $67k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 16 unpaid individuals.
What Medical Research executives earn
Comparable medical research organizations nationwide pay their highest-earning executive a median of $114,840.
These are medical research sector-wide figures, not this organization's reported pay. Based on 283 organizations across 283 filings (2021 – 2023).
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