TO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOVERNMENT AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 6 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $250k
- Bonus
- —
- Other
- —
- Benefits
- $849
- Base
- $168k
- Bonus
- —
- Other
- —
- Benefits
- $884
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Scientific Officer Highest Compensated Employee Median to 75th percentile | $250k | — | — | $849 | $258k $283k |
Chief Executive Officer Median to 75th percentile | $168k | — | — | $884 | $174k $190k |
Director of Research Highest Compensated Employee 10th to 25th percentile | — | — | — | — | $127k $140k |
President/director 25th percentile to median | — | — | — | — | $118k $130k |
VP Fundraising & Comms Board Vice President 10th to 25th percentile | — | — | — | — | $114k $125k |
Treasurer/director Finance Admin & HR Officer (Unspecified) | — | — | — | — | $61k $67k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 16 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at FRIEDREICH'S ATAXIA RESEARCH ALLIANCE equaled 2% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about FRIEDREICH'S ATAXIA RESEARCH ALLIANCE
What does the Highest Compensated Employee of FRIEDREICH'S ATAXIA RESEARCH ALLIANCE earn?
In 2023, the Highest Compensated Employee of FRIEDREICH'S ATAXIA RESEARCH ALLIANCE received $257,799 in total compensation. This pay is above the median (the midpoint) for Highest Compensated Employee roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Highest Compensated Employee pay at FRIEDREICH'S ATAXIA RESEARCH ALLIANCE compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2023 pay of the Highest Compensated Employee at FRIEDREICH'S ATAXIA RESEARCH ALLIANCE falls between the median and the 75th percentile. In 2023, the highest total compensation at FRIEDREICH'S ATAXIA RESEARCH ALLIANCE equaled 2% of the organization's total expenses. The median for medical research organizations is 10%.
What are FRIEDREICH'S ATAXIA RESEARCH ALLIANCE's revenue and expenses?
In 2023, FRIEDREICH'S ATAXIA RESEARCH ALLIANCE reported $11.2M in total revenue and $12.2M in total expenses on its IRS Form 990.
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