Mission
TO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOVERNMENT AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.
Executive compensation, broken down
Form 990 · Schedule J · 6 reported individuals · Filing year 2023
Base salaryBonusOther compensationBenefits
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Chief Scientific Officer highest compensated employee $258k | |||||
Director of Research highest compensated employee $127k | |||||
Vp Fundraising & Comms vice president $114k | |||||
Treasurer/Director Finance Admin & HR officer (unspecified) $61k | |||||
Plus 16 unpaid individuals.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
1
VERMONT OXFORD NETWORK2023
$460k
2
FRIEDREICH'S ATAXIA RESEARCH ALLIANCE2023
$258k
3
THE ROSKAMP INSTITUTE INC2024
$216k
4
Chicago Association for Research and Education in Science2022
$175k
5
RICHMOND INSTITUTE FOR VETERANS RESEARCH2023
$138k
6
INNOVATIVE LIFESTYLES INC2022
$134k
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