Mission
PROVIDE INFORMATION AND RESOURCES TO PATIENTS WITH HCU; CREATING CONNECTIONS ACROSS PATIENTS; INFLUENCING POLICIES AND REIMBURSEMENTS; AND FUNDING RESEARCH FOR NEW THERAPIES.
Executive compensation
Form 990 · Schedule J · 1 reported individual · Filing year 2024
| Base salary | Executive compensation | |
|---|---|---|
Executive Officer/secretar officer (unspecified) $72k | ||
Plus 10 unpaid individuals.
Up 5%
from 2023
From $69k in 2023 to $72k in 2024.
$69k
2023
$72k
2024
$69k
2023
$72k
2024
Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
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