THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER, WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND GRANTS - OUR FOUNDATION WORK HAS FOCUSED ON THE FOLLOWING PROGRAM INITIATIVES TO DATE: THE EXPANSION OF INDIVIDUALIZED MEDICINES; CLINICAL TRIALS & PROGRAMS, INCLUDING AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL, A CLN7 GENE THERAPY TRIAL, AND A BATTEN & NEURODEGENERATIVE DISEASE CLINIC; AND BASIC SCIENCE RESEARCH FOR BATTEN DISEASE, INCLUDING A PEDIATRIC CELL ATLAS OF BATTEN PATHOBIOLOGY AND THERAPEUTIC RESPONSE.
Executive compensation
Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
| Position | Total |
|---|---|
President 25th percentile to median | $113k $121k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with BLS CPI-U for the West region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 5 unpaid individuals.
Top pay as a share of expenses
In 2024, the highest total compensation at MILA'S MIRACLE FOUNDATION equaled 23% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 3%
from 2023
From $110k in 2023 to $113k in 2024.
Estimated with BLS CPI-U for the West region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about MILA'S MIRACLE FOUNDATION
What does the Chief Executive Officer of MILA'S MIRACLE FOUNDATION earn?
In 2024, the Chief Executive Officer of MILA'S MIRACLE FOUNDATION received $113,470 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at MILA'S MIRACLE FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2024 pay of the Chief Executive Officer at MILA'S MIRACLE FOUNDATION falls between the 25th percentile and the median. In 2024, the highest total compensation at MILA'S MIRACLE FOUNDATION equaled 23% of the organization's total expenses. The median for medical research organizations is 10%.
What are MILA'S MIRACLE FOUNDATION's revenue and expenses?
In 2024, MILA'S MIRACLE FOUNDATION reported $707k in total revenue and $493k in total expenses on its IRS Form 990.
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