MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 8 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $529k
- Bonus
- $105k
- Other
- —
- Benefits
- $33k
- Base
- $370k
- Bonus
- $75k
- Other
- —
- Benefits
- $35k
- Base
- $371k
- Bonus
- —
- Other
- $1k
- Benefits
- $594
- Base
- $246k
- Bonus
- $40k
- Other
- —
- Benefits
- $34k
- Base
- $279k
- Bonus
- —
- Other
- —
- Benefits
- $917
- Base
- $232k
- Bonus
- $36k
- Other
- —
- Benefits
- $571
- Base
- $228k
- Bonus
- $14k
- Other
- —
- Benefits
- $18k
- Base
- $200k
- Bonus
- $31k
- Other
- $5k
- Benefits
- $594
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
President & CEO 75th to 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Illinois | $529k | $105k | — | $33k | $668k $715k |
Treasurer & CFO Above 90th percentile | $370k | $75k | — | $35k | $510k $546k |
Sec. & Chief Legal Officer Officer (Unspecified) | $371k | — | $1k | $594 | $404k $432k |
Chief Research Officer Highest Compensated Employee 75th to 90th percentile | $246k | $40k | — | $34k | $348k $373k |
Chief Development Officer 75th to 90th percentile | $279k | — | — | $917 | $308k $330k |
Vp, Human Resources & Volunteers Board Vice President 75th to 90th percentile | $232k | $36k | — | $571 | $299k $321k |
Chief Marketing Officer Highest Compensated Employee 75th to 90th percentile | $228k | $14k | — | $18k | $290k $311k |
Vp, Healthcare Services Board Vice President 75th to 90th percentile | $200k | $31k | $5k | $594 | $259k $278k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 20 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at MUSCULAR DYSTROPHY ASSOCIATION INC equaled 1% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 27%
from 2023
From $524k in 2023 to $668k in 2024.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 27% from 2023 to 2024, while revenue rose 2%.
- Chief Financial Officer pay rose 35% from 2023 to 2024.
- Highest Compensated Employee pay rose 26% from 2023 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.
Revenue and expenses over time
MUSCULAR DYSTROPHY ASSOCIATION INC reported revenue and expenses across 2 filing years.
What Diseases, Disorders & Medical Disciplines executives earn in Illinois
Comparable diseases, disorders & medical disciplines organizations in Illinois pay their highest-earning executive a median of $128,350.
These are diseases, disorders & medical disciplines sector-wide figures, not this organization's reported pay. Based on 85 organizations across 85 filings (2023 – 2024).
See full Diseases, Disorders & Medical Disciplines pay data for Illinois →Common questions about MUSCULAR DYSTROPHY ASSOCIATION INC
What does the Chief Executive Officer of MUSCULAR DYSTROPHY ASSOCIATION INC earn?
In 2024, the Chief Executive Officer of MUSCULAR DYSTROPHY ASSOCIATION INC received $667,598 in total compensation. This pay is in the top quarter for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Illinois, though not the top 10% of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at MUSCULAR DYSTROPHY ASSOCIATION INC compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Illinois, the 2024 pay of the Chief Executive Officer at MUSCULAR DYSTROPHY ASSOCIATION INC falls between the 75th and 90th percentiles. In 2024, the highest total compensation at MUSCULAR DYSTROPHY ASSOCIATION INC equaled 1% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are MUSCULAR DYSTROPHY ASSOCIATION INC's revenue and expenses?
In 2024, MUSCULAR DYSTROPHY ASSOCIATION INC reported $60.4M in total revenue and $66M in total expenses on its IRS Form 990.
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