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National Foundation for Ectodermal Dysplasias

Fairview Heights, Illinois·EIN 37-1112496·NTEE G46Z · Diseases, Disorders & Medical Disciplines·501(c)(3)·Filing year 2024

National Foundation for Ectodermal Dysplasias's highest-paid officer, the Executive Director, was reported at $128,350 for 2024 (IRS Form 990), including base pay and other compensation. Reported CEO pay ranged from $121,124 to $128,350 between 2023 and 2024.

Total revenue
$1.2M
Total assets
$4.8M
Total expenses
$1.2M
Reported officers
14

TO EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS THROUGH EDUCATION, SUPPORT, AND RESEARCH.

Executive compensation

Form 990 · Part VII & Schedule J · 1 reported individual · Filing year 2024

Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations in Illinois.

Executive Director
25th percentile to median
$128k

Plus 13 unpaid individuals.

Browse compensation in Diseases, Disorders & Medical Disciplines →

Top pay as a share of expenses

In 2024, the highest total compensation at National Foundation for Ectodermal Dysplasias equaled 11% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

This organization (2024)
11%
Sector median
10%
Middle half of sector
4% to 22%

Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Up 6%
from 2023

From $121k in 2023 to $128k in 2024.

$121k
2023
$128k
2024
Pay for the position

Chief Executive Officer pay rose 6% from 2023 to 2024, while revenue rose 6%.

$121k in 2023 to $128k in 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

Common questions about National Foundation for Ectodermal Dysplasias

What does the Chief Executive Officer of National Foundation for Ectodermal Dysplasias earn?

In 2024, the Chief Executive Officer of National Foundation for Ectodermal Dysplasias received $128,350 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Diseases, Disorders & Medical Disciplines organizations in Illinois, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.

How does Chief Executive Officer pay at National Foundation for Ectodermal Dysplasias compare with similar nonprofits?

Compared with the same role at Diseases, Disorders & Medical Disciplines organizations in Illinois, the 2024 pay of the Chief Executive Officer at National Foundation for Ectodermal Dysplasias falls between the 25th percentile and the median. In 2024, the highest total compensation at National Foundation for Ectodermal Dysplasias equaled 11% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.

What are National Foundation for Ectodermal Dysplasias's revenue and expenses?

In 2024, National Foundation for Ectodermal Dysplasias reported $1.2M in total revenue and $1.2M in total expenses on its IRS Form 990.

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