TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 6 reported individuals · Filing year 2024
Percentile bands compare each position's total pay with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide.
- Base
- $221k
- Bonus
- $23k
- Other
- —
- Benefits
- $21k
- Base
- $208k
- Bonus
- $22k
- Other
- —
- Benefits
- $23k
- Base
- $164k
- Bonus
- $20k
- Other
- —
- Benefits
- $25k
- Base
- $167k
- Bonus
- $18k
- Other
- —
- Benefits
- $2k
- Base
- $140k
- Bonus
- $14k
- Other
- —
- Benefits
- $1k
- Base
- $116k
- Bonus
- $13k
- Other
- —
- Benefits
- $23k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Scientific Officer Key Employee Median to 75th percentile | $221k | $23k | — | $21k | $273k $290k |
President & CEO 75th to 90th percentilevs Diseases, Disorders & Medical Disciplines peers in Maryland | $208k | $22k | — | $23k | $260k $276k |
Vice President, Translatio Board Vice President Median to 75th percentile | $164k | $20k | — | $25k | $214k $228k |
Chief Financial Officer Median to 75th percentile | $167k | $18k | — | $2k | $192k $204k |
Chief Outreach Officer Highest Compensated Employee 25th percentile to median | $140k | $14k | — | $1k | $160k $170k |
Vice President, Donor Rela Board Vice President 25th percentile to median | $116k | $13k | — | $23k | $156k $166k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 27 unpaid individuals.
Browse compensation in Diseases, Disorders & Medical Disciplines →
Top pay as a share of expenses
In 2024, the highest total compensation at NATIONAL TUBEROUS SCLEROSIS ASSOCIATION equaled 3% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
Based on 2,393 diseases, disorders & medical disciplines organizations, each measured at its most recent filing year with reported expenses and compensation.
Climbed 5%
over 2 years
From $260k in 2022 to $273k in 2024.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Key Employee pay rose 5% from 2022 to 2024, while revenue rose 12%.
- Chief Executive Officer pay rose 5% from 2022 to 2024.
- Board Vice President pay rose 12% from 2022 to 2024.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2024.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
What does the Key Employee of NATIONAL TUBEROUS SCLEROSIS ASSOCIATION earn?
In 2024, the Key Employee of NATIONAL TUBEROUS SCLEROSIS ASSOCIATION received $272,694 in total compensation. This pay is above the median (the midpoint) for Key Employee roles among Diseases, Disorders & Medical Disciplines organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Key Employee pay at NATIONAL TUBEROUS SCLEROSIS ASSOCIATION compare with similar nonprofits?
Compared with the same role at Diseases, Disorders & Medical Disciplines organizations nationwide, the 2024 pay of the Key Employee at NATIONAL TUBEROUS SCLEROSIS ASSOCIATION falls between the median and the 75th percentile. In 2024, the highest total compensation at NATIONAL TUBEROUS SCLEROSIS ASSOCIATION equaled 3% of the organization's total expenses. The median for diseases, disorders & medical disciplines organizations is 10%.
What are NATIONAL TUBEROUS SCLEROSIS ASSOCIATION's revenue and expenses?
In 2024, NATIONAL TUBEROUS SCLEROSIS ASSOCIATION reported $10M in total revenue and $8.7M in total expenses on its IRS Form 990.
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