TO PROVIDE INFORMATION ABOUT THE DISORDER NEUROFIBROMATOSIS TO THOSE AFFECTED AND HELP FAMILIES FIND MEDICAL, SOCIAL AND GENETIC COUNSELING. TO RAISE AND SEEK FUNDS FOR RESEARCH FOR A CURE.
Executive compensation
Form 990 · Schedule J · 1 reported individual · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations in Illinois.
| Position | Total |
|---|---|
Executive Di 25th percentile to median | $104k $115k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 17 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at NEUROFIBROMATOSIS NETWORK equaled 21% of the organization's total expenses. The median for medical research organizations is 9%.
Based on 1,042 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Held steady
from 2022
From $104k in 2022 to $104k in 2023.
Estimated with Chicago-Naperville-Elgin, IL-IN-WI metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay held roughly steady from 2022 to 2023, while revenue rose 10%.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2023.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about NEUROFIBROMATOSIS NETWORK
What does the Chief Executive Officer of NEUROFIBROMATOSIS NETWORK earn?
In 2023, the Chief Executive Officer of NEUROFIBROMATOSIS NETWORK received $104,158 in total compensation. This pay is below the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations in Illinois, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at NEUROFIBROMATOSIS NETWORK compare with similar nonprofits?
Compared with the same role at Medical Research organizations in Illinois, the 2023 pay of the Chief Executive Officer at NEUROFIBROMATOSIS NETWORK falls between the 25th percentile and the median. In 2023, the highest total compensation at NEUROFIBROMATOSIS NETWORK equaled 21% of the organization's total expenses. The median for medical research organizations is 9%.
What are NEUROFIBROMATOSIS NETWORK's revenue and expenses?
In 2023, NEUROFIBROMATOSIS NETWORK reported $452k in total revenue and $491k in total expenses on its IRS Form 990.
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