OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.
Executive compensation, broken down
Form 990 · Part VII & Schedule J · 2 reported individuals · Filing year 2023
Percentile bands compare each position's total pay with the same role at Medical Research organizations nationwide.
- Base
- $200k
- Bonus
- —
- Other
- —
- Benefits
- $10k
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Chief Executive Officer Median to 75th percentile | $200k | — | — | $10k | $228k $250k |
Chief Program Officer 25th percentile to medianvs all sectors nationwide | — | — | — | — | $136k $149k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 12 unpaid individuals.
Top pay as a share of expenses
In 2023, the highest total compensation at OSTEOGENESIS IMPERFECTA FOUNDATION equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
Based on 1,118 medical research organizations, each measured at its most recent filing year with reported expenses and compensation.
Funded by
Private foundations whose Form 990-PF Part XV grants matched this organization.
Up 3%
from 2022
From $221k in 2022 to $228k in 2023.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Chief Executive Officer pay rose 3% from 2022 to 2023, while revenue rose 3%.
- Chief Program Officer pay rose 5% from 2022 to 2023.
Pay for the position itself, not any one person. The officeholder may have changed between 2022 and 2023.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
Common questions about OSTEOGENESIS IMPERFECTA FOUNDATION
What does the Chief Executive Officer of OSTEOGENESIS IMPERFECTA FOUNDATION earn?
In 2023, the Chief Executive Officer of OSTEOGENESIS IMPERFECTA FOUNDATION received $227,892 in total compensation. This pay is above the median (the midpoint) for Chief Executive Officer roles among Medical Research organizations nationwide, within the top half of comparable filings. Based on IRS Form 990 data.
How does Chief Executive Officer pay at OSTEOGENESIS IMPERFECTA FOUNDATION compare with similar nonprofits?
Compared with the same role at Medical Research organizations nationwide, the 2023 pay of the Chief Executive Officer at OSTEOGENESIS IMPERFECTA FOUNDATION falls between the median and the 75th percentile. In 2023, the highest total compensation at OSTEOGENESIS IMPERFECTA FOUNDATION equaled 9% of the organization's total expenses. The median for medical research organizations is 10%.
What are OSTEOGENESIS IMPERFECTA FOUNDATION's revenue and expenses?
In 2023, OSTEOGENESIS IMPERFECTA FOUNDATION reported $2.3M in total revenue and $2.5M in total expenses on its IRS Form 990.
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