Mission
OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.
Executive compensation, broken down
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
Base salaryBonusOther compensationBenefits
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Chief Program Officer highest compensated employee $136k | |||||
Plus 12 unpaid individuals.
Up 3%
from 2022
From $221k in 2022 to $228k in 2023.
$221k
2022
$228k
2023
$221k
2022
$228k
2023
Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
1
AMERICAN SOCIETY FOR INVESTIGATIVE2023
$337k
2
AMERICAN SPEECH-LANGUAGE-HEARING FOUNDATION2024
$253k
3
OSTEOGENESIS IMPERFECTA FOUNDATION2023
$228k
4
AMERICAN ASSOCIATION ON HEALTH &2023
$170k
5
THE ARVO FOUNDATION FOR EYE RESEARCH INC2024
$34k
6
AIM-HI ACCELERATOR FUND INC2024
$20k
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