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Filing year 2024

RETT SYNDROME RESEARCH TRUST INC

Trumbull, Connecticut·EIN 26-0687439·NTEE E12 · Health Care·501(c)(3)
Total revenue
$9.3M
Total assets
$20.4M
Total expenses
$11.7M
Reported officers
16
Mission

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

Executive compensation, broken down

Form 990 · Part VII & Schedule J · 4 reported individuals · Filing year 2024

Percentile bands compare each position's total pay with the same role at Health Care organizations nationwide.

Chief Scientific Officer
Key Employee
25th percentile to median
$220k
$238k
Base
$220k
Bonus
Other
Benefits
Chief Executive Officer
Median to 75th percentilevs Health Care peers in Connecticut
$220k
$238k
Base
$220k
Bonus
Other
Benefits
Chief Development Officer
Median to 75th percentile
$220k
$238k
Base
$220k
Bonus
Other
Benefits
Chief Technology Officer
Key Employee
25th percentile to median
$215k
$232k
Base
$215k
Bonus
Other
Benefits

Teal figures restate each filed amount in 2026 dollars.

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Plus 12 unpaid individuals.

Browse compensation in Health Care

Pay in context

Top pay as a share of expenses

In 2024, the highest total compensation at RETT SYNDROME RESEARCH TRUST INC equaled 2% of the organization's total expenses. The median for health care organizations is 4%.

This organization (2024)
2%
Sector median
4%
Middle half of sector
1% to 13%

Based on 13,830 health care organizations, each measured at its most recent filing year with reported expenses and compensation.

Funded by

Private foundations whose Form 990-PF Part XV grants matched this organization.

Held steady
from 2023

From $220k in 2023 to $220k in 2024.

$220k
2023
$220k
2024
In today's dollarsEst.
Down 3% in real terms$246k to $238k

Estimated with BLS CPI-U for the Northeast region, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.

Pay for the position

Chief Executive Officer pay held roughly steady from 2023 to 2024, while revenue rose 9%.

$220k in 2023 to $220k in 2024.
  • Chief Development Officer pay held roughly steady from 2023 to 2024.

Pay for the position itself, not any one person. The officeholder may have changed between 2023 and 2024.

Highest reported compensation in each year. Volunteer board members and partial-year payouts are filtered out.

Among peers

Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.

FAQ

Common questions about RETT SYNDROME RESEARCH TRUST INC

What does the Key Employee of RETT SYNDROME RESEARCH TRUST INC earn?

In 2024, the Key Employee of RETT SYNDROME RESEARCH TRUST INC received $220,000 in total compensation. This pay is below the median (the midpoint) for Key Employee roles among Health Care organizations nationwide, but above the bottom quarter of comparable filings. Based on IRS Form 990 data.

How does Key Employee pay at RETT SYNDROME RESEARCH TRUST INC compare with similar nonprofits?

Compared with the same role at Health Care organizations nationwide, the 2024 pay of the Key Employee at RETT SYNDROME RESEARCH TRUST INC falls between the 25th percentile and the median. In 2024, the highest total compensation at RETT SYNDROME RESEARCH TRUST INC equaled 2% of the organization's total expenses. The median for health care organizations is 4%.

What are RETT SYNDROME RESEARCH TRUST INC's revenue and expenses?

In 2024, RETT SYNDROME RESEARCH TRUST INC reported $9.3M in total revenue and $11.7M in total expenses on its IRS Form 990.

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