We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome ("SRS") and related disorders; and for related scientific and charitable purposes.
Executive compensation, broken down
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
- Base
- $81k
- Bonus
- —
- Other
- —
- Benefits
- —
- Base
- $41k
- Bonus
- —
- Other
- —
- Benefits
- —
| Position | Base | Bonus | Other | Benefits | Total |
|---|---|---|---|---|---|
Director of Research director (operational) | $81k | — | — | — | $163k $178k |
Director of Business Development & Membership | $41k | — | — | — | $81k $89k |
Teal figures restate each filed amount in 2026 dollars.
Estimated with Washington-Arlington-Alexandria, DC-VA-MD-WV metro-area CPI-U, restating filed pay into May 2026 dollars. A restatement of past pay, not current or projected pay.
Plus 4 unpaid individuals.
What Medical Research executives earn
Comparable medical research organizations nationwide pay their highest-earning executive a median of $114,840.
These are medical research sector-wide figures, not this organization's reported pay. Based on 283 organizations across 283 filings (2021 – 2023).
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