Mission
We are a rare disease patient advocacy organization. Our mission is to support medical research that will lead to safe and effective treatments for individuals with Snyder-Robinson Syndrome ("SRS") and related disorders; and for related scientific and charitable purposes.
Executive compensation, broken down
Form 990 · Schedule J · 2 reported individuals · Filing year 2023
Base salaryBonusOther compensationBenefits
| Base salary | Bonus | Other compensation | Benefits | Executive compensation | |
|---|---|---|---|---|---|
Director of Research director (operational) $163k | |||||
Plus 4 unpaid individuals.
Among peers
Revenue and top compensation, plotted against similar organizations. This organization is highlighted in cyan.
1
GLOBAL SOLUTIONS FOR INFECTIOUS DISEASES2024
$203k
2
SNYDER-ROBINSON FOUNDATION2023
$163k
3
THE CHIARI PROJECT2023
$10k
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